I'm new here too, and am glad that I found your site. I'm actually terribly exhausted today, so won't share much info. I'm also hoping that next time I want to come back here, I'll remember the sign-in name I used!

I don't have a diagnosis yet, but have several symptoms that are neuropathic. In the fall of 2007 I developed double vision. I've also been having muscle twitches for more than 3 months now...every day, all day. I get sharp 'electric' type pain sometimes down a limb. Sometimes my feet go numb, sometimes my hands tingle. I have had a rash on my face for about 10 years now. I was told it was rosacea though. I have some hair loss too. There's more, but I think that's the main stuff.

My mom has primary progressive multiple sclerosis. She is 56 years old and has lived in a nursing home for 10 years already. I have two aunts that were diagnosed with SLE (Lupus)...both on my dad's side of the family. One is struggling with lung problems mostly, and the younger aunt (58 years old) passed away due to Lupus in April 2009.

I don't know what I have, but it would be nice to find out. I'm hoping to learn from those on this forum...about their lives and the roads to (and beyond) their diagnosis.

Kind regards,

Jayne