I'm also a new member to this forum and have both occipital neuralgia, cervical dystonia, mtbi, chronic daily headaches, post-traumatic migraines, post-traumatic stress disorder. All resulting from Oct 2008 car accident.

I have found, like many of you, ways to cope -- and try to take it one day at a time. I too was an extremely active person, at the pinnacle of a great career and at a good point in my marriage after 29 years.

I have tried everything suggested to me -- accupuncture, aggressive physical therapy, certain medications, Botox injection therapy. I'm curious about the fusions -- did you have damaged or herniated discs? I'm glad you have had some relief from them, but have learned that one "cure" can be to the detriment of other affected areas. I'm also curious about the cervical spinal cord stimulator -- how that works. It cured your ON. I hope your neck pain will also diminish as well.

The reality is that however we were injured, whatever our medical diagnoses are, we personally have to deal with it. Friends/family are compassionate, want to take the pain away -- but I have found it difficult for them to really understand. It's easy to see the pain someone may have with a broken limb in a cast -- but is difficult to see the pain we have in our heads. It's difficult to describe the pain -- mine changes depending on Botox schedule (every 3 months), on how much I push and then am exhausted. My brain tells me when it's power is about to turn off. I literally feel like the Energizer Bunny that drums across the floor and just stops. That happens to me. I almost collapse sometimes. Sleep is one of the best ways to heal my head -- even at times when it's extremely difficult to lay it down. I have spent many nights propped up so that my occipitals aren't pushing on the pillow. I think crying can be a good thing -- as is talking with others that understand. I keep a daily diary and that helps. Some times I write "same as yesterday -- same old story".

We all have to make new lives, and I think I have concluded after almost 2 years that, I won't be returning to my former life. It's just how it is. I have to retrain my brain in many areas, but the hardest retraining is for others around us. They need to understand and ACCEPT our limitations.

I do housework if and when I can; luckily have a daughter still at home helping with groceries, the dog, other daily tasks.

I have a consulation with a doctor next week who is a cervical chiropractor. She said I sound like a prime candidate. We'll see. Would love to avoid any surgery on my neck.

Thanks for listening...

SURGERY?! Someone better have a very good reason and a lot of proof before I'd go there.

I am now a massage therapist trained in medical massage therapy, I did this to treat myself and where this goes from here... I'm not real focused on that right now.

I am not a doctor (nor have I played on on TV). I cannot diagnose or prescribe any drugs or methods or tell you that this will work for you. This is all my OPINION and should be taken as such. DO YOUR OWN HOMEWORK.

I have an update on my TN since my last post. I have found the cervical vertebra (C-7) that seems to be causing my TN. As I have been relieving the knots (trigger points, look it up!) in my neck my TN has been shifting in severity and location. I see that as a good sign.

There is an extremely tender spot on the left side of C-7 that causes a pressure feeling in my neck, behind my left eye, and at the bottom of my left Scapula when I push on it (this is a classic trigger point). This has taken 6 months to locate and I'm still not 100% sure I have it.

This morning I got hit again and as my face lit up I poked into the C-7 location a few times and as I got the angle just right and pushed in the TN stopped. I have stopped the TN three times today just by pushing on that same spot when I get it. One of the indications that you have a trigger point is that when you push directly on the amorphous point, the pain in other areas of the body (side of my face) will stop. This has worked with many tender spots on me and ii recognize the relief when it happens.

I believe most people have one or more of these trigger points that is causing the TN. I have been going to school since last April to learn about Myofacial release of trigger points. My TM symptoms fit right in with the symptoms that trigger points cause in other areas of the body and now I have found even more reasons to be hopeful of trigger points causing my TM, and hundreds of other people as well.

I started the schooling to be a medical massage therapist because I have been trying to find relief for shoulder, neck, and hip pains, that no one can explain (until now) and Worker's Comp (started as a workplace injury) kicked me out and gave me a few bucks and told me to find my own way to relief (in so many words). So, I did.

I have stopped all my hip pain, most of my shoulder pain (although I still get up several nights a week to take a hot shower and calm down the trigger points that wake me up with a fire like pain) which is about one fifth of the pain I was in one year ago.

Here is a list of what I've been learning and is printed on the back of my business card. I'm not really in business yet because of the TM but I do have insurance, a business lic., I have been helping other with severe pains at no charge and have had spectacular results according to the friends I have helped.

Medical massage addresses
many problems including:
Frozen Shoulder - Knee Pain
Neck and Back Pain
Tendonitis
Trigger Finger
Auto/Work/Sports Injuries
Whiplash
Scar Tissue
Mastectomy
Pain Associated with Arthritis
Sciatica
Heel Spur
Problems walking or climbing stairs
Carpal Tunnel
Improved Athletic Performance
Fibromyalgia
Trigger Points

And Trigiminal Neuralgia

I have worked on and had varying success with all of these conditions except Fibromyalgia, and that's because no one has come forward yet for me to attempt relief.

I worked on my neck/TM for several hours today and the TM is a little touchy right now so I'm not going to taunt it much more for today.

The first thing I would look for to see if my TM was caused by knots in my body would be to have someone look at me standing upright and see if I have a head-forward posture (which I do). Besides that Whiplash can start TM if it has gone on for a long time. These "knots" can and do last in your body for many years. I have removed and had removed, spots that date back to 1972 when I spent a Thanksgiving night, all night, loading four-turkey pans into ovens at one of my first jobs. That Sciatica pain lasted for 24 years until I had the trigger point removed from my spine last year. That's why my hip no longer has any pain.

Anyway, watch out for doctors who want to cut. Most doctors who can't find an answer to problems always wnnt to cut for exploratory reasons or want to give pain pills to shut me up. I think I have a better way and I'm just trying to spread the information so everyone can look at a different method of solving a problem.

For what its worth,
KBCMT

Here's a nice triggerpoint chart for the upper body that might be of help for some of you -
http://www.pressurepointer.com/pain_reference_chart.htm

Many use a tennis ball or other ball sizes against a wall or laying on them on the floor to find the triggerpoints and apply the pressure.

No disrespect meant, but trigger points don't do a thing for ON. When its bad, touching the nerve sets off lightening like shocks of pain that can occur in the neck, scalp, forehead, and sometimes the temples. The pain occurs where the nerve travels and is not referred pain from trigger points. When mine is really bad, just my hair moving is painful.

I am now a massage therapist trained in medical massage therapy, I did this to treat myself and where this goes from here... I'm not real focused on that right now.

I am not a doctor (nor have I played on on TV). I cannot diagnose or prescribe any drugs or methods or tell you that this will work for you. This is all my OPINION and should be taken as such. DO YOUR OWN HOMEWORK.

I FOUND IT! The cause of my TM. It only took a total of three weeks of palpation and experimentation to find two small muscles in the back of my head that caused my TM.

I located Rectus Capitus Posterior Major and it was a little bit sore. The reason I found that area is that when I would push on that location on my head my TM would sometimes stop in its tracks. I know that if you press on a trigger point it will stop the referred pain it causes. I felt that treating that location like a trigger point was worth a try. Does your TM strike you less when you lie down?

My TM was 30% better after I worked that trigger point area, even though I could not find an actual trigger point there to start with. The next day I found that the release of that muscle had relaxed an area next to it (Oblique Capitus Superior) and I found a trigger point there as well so I worked that muscle next. That was 10am this morning and by this evening I could eat without shocks to the face, showered and washed my face, brushed my teeth, flossed, and kissed my wife good night, things I haven't done in weeks now.

Not much movement on this forum and I'm moving on to tell others what I have found. If anyone wishes to discuss this with me further I will try and look in on this forum once a month or so, or you can let me know there is a message here by sending me an email **. Don't put up with TM any longer! My discovery may not work for you but I have traceable, documented, science as to why it worked for me, and what I found, and why doctors don't always know.

For what its worth and smiling again,
KBCMT