Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

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Old 12-19-2010, 04:11 AM #1
Cerridwen35 Cerridwen35 is offline
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Cerridwen35 Cerridwen35 is offline
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Join Date: Dec 2010
Location: Florida
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Originally Posted by EE03 View Post
I undergo nerve blocks regularly for ON. The times that my pain doctor has hit the nerve directly, the medication has traced the nerve. In my case, one of the 2 ON extends to my forehead and temple area. The auricular nerve is the one that goes around the ear. These only bring temporary relief though. I have heard of others doing botox with good temporary results, and RFA but those are only temporary too, and from what I've read, they can make the pain worse when the nerves regenerate. My pain doc has suggested it to me on several occasions and he indicated that the pulsed radio frequency is better than the standard one they use. Given that your getting anothe trial at the stimulator, I'd say go for it and hope for the best. Did you find that your pain was worse than before after the nerve regenerated from the ablation?
Thanks for the reply to my message. Actually, the pain didn't increase any after the cryoblation. Basically, when it came back, it was the same as before; however, I only got about 2 weeks relief. I had about 4-6 weeks pain relief after the RFA, but the pain was much worse than before when it returned. For a while, anytime my neck would pop, I'd have absolutely debilitating pain that would shoot up my head. When that happened, I'd scream and just drop to the floor. I just underwent the trial stimulator again. Because the doc put it a little lower, I didn't have the earlier problems. By the time he took it the trial leads out, the back of my head was virtually pain free while sedentary. I was able to move around a little more without severe pain. Now, I'm fighting with insurance over the permanent one. For some reason, they denied the permanent one before the doctor even reported my results. Health insurance is irritating! I hope you find some relief for your pain.
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Old 12-19-2010, 04:46 PM #2
EE03 EE03 is offline
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EE03 EE03 is offline
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Originally Posted by Cerridwen35 View Post
Thanks for the reply to my message. Actually, the pain didn't increase any after the cryoblation. Basically, when it came back, it was the same as before; however, I only got about 2 weeks relief. I had about 4-6 weeks pain relief after the RFA, but the pain was much worse than before when it returned. For a while, anytime my neck would pop, I'd have absolutely debilitating pain that would shoot up my head. When that happened, I'd scream and just drop to the floor. I just underwent the trial stimulator again. Because the doc put it a little lower, I didn't have the earlier problems. By the time he took it the trial leads out, the back of my head was virtually pain free while sedentary. I was able to move around a little more without severe pain. Now, I'm fighting with insurance over the permanent one. For some reason, they denied the permanent one before the doctor even reported my results. Health insurance is irritating! I hope you find some relief for your pain.
If your health insurance doesn't cooperate, consider contacting the State Dept. of Ins. as they have people who can help you get their attention. Its encouraging that the stimulator is working for you. I'm still dealing with blocks and medication along with other treatments. I've had RFA's to my cervicals and at times, I've gotten a little better ON relief, but I'm now in the downward spin where the pain is starting to escalate. Best of luck with everything and I hope the stim keeps the pain at bay.
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