[Vowel Lady]

I've had migraines for many years and when they were at their worst, I had those injections or something very similar with very little good results. I know it isn't exactly the same thing and it isn't very encouraging...my apologies. Hopefully, someone will have something better to report for you.

I am seeing the neuro tomorrow...my symptoms suggest Trigeminal Neuralgia.

I sympathize/empathize greatly with you having just been dx'd with ON.

I dread the idea of possibly being prescribed Neurontin. Were/are you on a high dosage of this? What other meds were discussed?

Wishing you well...hang in there!!!!

[amw5]

Thanks for your reply.

I'm currently taking 200mg of gabapentin at bedtime. This is the only medication my neurologist and I have discussed so far.

[EE03]

Originally Posted by amw5

Thanks for your reply.

I'm currently taking 200mg of gabapentin at bedtime. This is the only medication my neurologist and I have discussed so far.

I'm sorry to hear that you have this. I've had many shots and I still undergo them regularly. I get immediate relief from the numbing agents and then I sometimes get extended relief from the steroids, however the time varies. More importantly for me, it helps break up the cycle so that in time, my headaches are lessened for awhile. They gradually build back up to what they were previously and then I go for more shots. My pain doc has talked to me about going for an implanted stimulator but I'm not ready to go there, yet. I've left it open for future discussion. I'd rather see more stats from successful people for this condition as right now there isn't enough to satisfy me. Have your docs discussed the cause of this with you? Sorry to welcome you here, but there is alot of good info in the forums and more from those who post. EE

[amw5]

I had to stop taking gabapentin because it caused a rash. I was given Lyrica to take, and several hours after taking the first one, I realized it wasn't the medication for me. After only one dose, Lyrica had me feeling strange, weird and feeling so unlike myself. It makes me wonder how anyone can deal with taking it.

I thought the steroid was in the nerve block, but it was just the numbing agent. I hope to get the next nerve block (including the steroid this time) soon.

I wonder how people deal with neuralgia after so much time. I've been dealing this this pain since May (diagnosed in August). This is the worse thing I've ever experienced, and I'm not sure how much more I can take. It makes me feel as if my body is going to do something strange that I can't control.

Originally Posted by EE03

I'm sorry to hear that you have this. I've had many shots and I still undergo them regularly. I get immediate relief from the numbing agents and then I sometimes get extended relief from the steroids, however the time varies. More importantly for me, it helps break up the cycle so that in time, my headaches are lessened for awhile. They gradually build back up to what they were previously and then I go for more shots. My pain doc has talked to me about going for an implanted stimulator but I'm not ready to go there, yet. I've left it open for future discussion. I'd rather see more stats from successful people for this condition as right now there isn't enough to satisfy me. Have your docs discussed the cause of this with you? Sorry to welcome you here, but there is alot of good info in the forums and more from those who post. EE

[amw5]

I've been feeling much better since I received two nerve blocks a few days ago (and also a new medication - amitriptyline 10mg at bedtime). I'm keeping my fingers crossed that this continues helping.

I've been learning a lot by reading the many threads on this forum. It's nice to be able to communicate with everyone here.

[peteremond]

Originally Posted by amw5

I've been feeling much better since I received two nerve blocks a few days ago (and also a new medication - amitriptyline 10mg at bedtime). I'm keeping my fingers crossed that this continues helping.

I've been learning a lot by reading the many threads on this forum. It's nice to be able to communicate with everyone here.

AMW5,
I just joined NeuroTalk and saw your post. How are you doing now? My friend has Occipital Neuralgia (ON) and is about to go see Dr. Hae-Dong Jho in Pittsburgh for a consult and see if he is a candidate for his nerve decompression surgery for ON. Have you looked into this procedure? Or do you know of anyone who has gone to see Dr. Jho?

I look forward to hearing from you.

Warm regards,
Peter

[amw5]

@peteremond

Hi Peter,

I am doing SO MUCH better now. Thanks for asking.

After a whole lot more research, the actual root of my problem was FINALLY properly diagnosed. Although my symptoms were very similar to ON, my sternocleidomastoid muscle was the cause of those terrible God awful headaches. I get a massage weekly, and I was getting the sternocleidomastoid muscle concentrated on more, and it was a tremendous relief. When that muscle gets tight, it can cause some awful headaches, neck pain (which is where the muscle is located), shoulder pain, arm pain and other issues. If you Google it, you will find a ton of information on it. I haven't experienced any headaches in a while now (very, very thankful for that). I wish your friend the best of luck, and I hope he's able to get some relief. Please keep me posted. Take care.

Originally Posted by peteremond

AMW5,
I just joined NeuroTalk and saw your post. How are you doing now? My friend has Occipital Neuralgia (ON) and is about to go see Dr. Hae-Dong Jho in Pittsburgh for a consult and see if he is a candidate for his nerve decompression surgery for ON. Have you looked into this procedure? Or do you know of anyone who has gone to see Dr. Jho?

I look forward to hearing from you.

Warm regards,
Peter