Well, I've just had my latest nerve block. I had it done on Wednesday by my neuro. It's just starting to work now, just on 2 days later.
I can feel my pain level dropping and my mood lifting already! lol
~Jaime~

That is wonderful news Jaime! How is working now? Hope you are still getting relief

Yes, it's still working well, thanks. That's one less pain to deal with anyway!

Fantastic! Glad to hear it. My last block was a total disaster, I haven't been brave enough to try it again. But, so glad it is bring you relief~ Nikki

If you go to youtube and search ON, there is a 2 part vidoe of a guy with ON getting an ONS. It's interesting how well he did.

So, I watched the video and I must admit, it kinda scared the crap outta me. I have been referred to a guy who does the ONS and will probably be getting it done soon after exhausting many other techniques (and mind you, I'm only 20). Anyways, I'd appreciate any advice, guidance, etc. about the procedure.

Thanks!

My cousin, female 32, has RSD. It is localized to her right foot and leg. She says
it flares every few months. It is flared now. It burns, she says. Most of the pain is
in the foot she broke two years ago. When she had her first nerve block, she experienced
her first seizure. Now she has seizures every couple months. She doesn't jerk. She just
seems to pass out briefly, then, she doesn't know who family is for a few minutes. Her
speech is usually slurred too. Do you think this is from the nerve blocks? Also, how
intense is the permanent nerve stimulator? She is afraid to get one implanted.
Thank you

I saw my pain specialist today and she is actively working on getting approval and funding for me to get an ONS. She said the gov't has approved a few for Angina pain and she is working on seeing if they will actually reallocate one of them for me.

While I would be glad to have the pain be gone permanantly, I am starting to feel a bit scared at the idea of having wires in my head and a battery pack in my abdomen.

ON is not for wimps! *laughs* I am only 37 and I think I'm too young to be dealing with the crud too! Especially since I was also diagnosed with MS this spring. How much more can a girl take? I spend far too much time at the hospital. I am hoping if I do end up getting this ONS, it would mean LESS time at the hospital.

Hi Jaime
are you still doing o,k with your blocks ?
pain specialist has taken me off versitis patches as they were not doing any
good. i am now back on nerve blocks, had one today he is trying to get aeneasetic right into lft side of my face my pain being all in lft of head & face.
just had 5 docs watching & nurses trying to hold my hands as though i hadn`t had them before. not feeling good tonight & can`t lie down hopefully will be o.k in another couple of days.
regards jane

Yes, my ON block is still working. It's almost 2 months now, and I'm still getting good relief. The warmer weather seems to help too.
I hope the block you had soon starts working.