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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

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What caused your Neuralgia?

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Old 06-27-2008, 05:01 PM #21
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Richie,

I am so sorry the injections didn't help you. I think that is what is so weird about having ON. The docs originally diagnosed me with ON but when they saw the cervical spine MRI they changed that diagnosis to Cervicogenic headaches with variant migraines. I feel blessed in a sense because the culprit was eventually found but it took a good 3 years. But I also know ON can be muscular in nature and all kinds of other things. I hope the Botox works for you as it did my friend. Let us know if it helps.
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Old 06-27-2008, 05:11 PM #22
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Originally Posted by leftygolf05 View Post
I had nerve blocks, facet injections, cortisone and lanicane, and it did not work for me. I have had "ON" for 15 years. i am now trying Botox and hoping and praying that my headaches go away. I will let you know how it goes.

Richie
I'll be watching for your posts. On my front, the insurance company approved the EMG and Myelogram so next week will be EMG and myelogram will follow on the next Monday. I hope the doc gets me in soon after that.

Ellena
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Old 07-11-2008, 08:05 PM #23
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My ON is from failed brain surgeries for the TN. The scar tissue has built up and is now causing bilateral ON
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Old 07-11-2008, 10:46 PM #24
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Originally Posted by Nik-key View Post
My ON is from failed brain surgeries for the TN. The scar tissue has built up and is now causing bilateral ON
Just what you don't need...more nerve pain than you had before!
My ON is from successful brain surgery to remove a cyst, but where the surgeon went in through my neck, was too close to the left occ. nerves!

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Old 07-12-2008, 04:03 AM #25
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Well, I'm guessing mine is from a car accident (whiplash).

Ellena
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Old 07-12-2008, 12:46 PM #26
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Just what you don't need...more nerve pain than you had before!
My ON is from successful brain surgery to remove a cyst, but where the surgeon went in through my neck, was too close to the left occ. nerves!

~Jaime~
Sorry to hear that Jamie. I had the MVD - they also enter through the skull at the back of the skull. I believe that is the reason the right side is so bad. When I use to have the nerve blocks I always needed an extra one right where the "plug" is. Gee thanks guys LOL
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Old 07-12-2008, 12:47 PM #27
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Sorry to hear that Ellena, no fun at all
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Old 07-13-2008, 04:20 AM #28
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Thanks Nikkey. I keep reminding myself that it could always be worse.

Ellena
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Old 07-16-2008, 06:52 PM #29
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Default botox no good
I had the Botox injections, but they did not work.

I am going back next week to see what else can be done
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Old 07-19-2008, 04:17 PM #30
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Quote:
Originally Posted by Nik-key View Post
Sorry to hear that Jamie. I had the MVD - they also enter through the skull at the back of the skull. I believe that is the reason the right side is so bad. When I use to have the nerve blocks I always needed an extra one right where the "plug" is. Gee thanks guys LOL


Hi Nik-key
thanks for your info on the patches , perhaps your hair is shorter than mine but will give them a go.
my o.c is being caused by 2 brain tumours inoperable, benign but causing me a lot of symptoms. jane mCc
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