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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.) |
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09-25-2008, 11:07 PM | #1 | ||
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my side affects are changing almost everyday to more problems or the same problems comming back. One thing is that I do not vibate on the left side so far....the ringing in my left ear has returned.....now ringing in both ears like before....this occipital nerve must be tough.....it has withstood 19 minutes of burn.... on each side........and still kicking...... I want to check out the decommpression surgery being done by dr.Jho or the same surgery being done at the university of pittsburg pa. check out the web site of dr. Jho on the C-2 decompression surgery.... I saw it on T.V. last week....My only recourse at this hospital is cut the nerve and that is not what I want to do next.....best wishes......snappy10 |
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09-26-2008, 03:47 PM | #2 | ||
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09-26-2008, 07:11 PM | #3 | ||
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Snappy,
I am from Indianapolis too. WHERE did you have the nerve ablation done? If you want or need the name of a good PM that treated me for all of this, I can give you his name. He is an Anesthesiologist with a background in Internal Medicine and Pain Medicine; Board Certified, etc. His speciality is "cervical pathology and headaches coming from the cervical spine". He is now the Director of the Spine Clinic at a certain hospital. And I will just add I was being seen somewhere else for 3 years with no relief in sight! Then a co worker of mine told me about the doc I am referring to and he was my savior!! Anyway, if interested, let me know. |
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03-14-2009, 08:30 PM | #4 | ||
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03-15-2009, 07:25 AM | #5 | ||
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Hi Nelko,
His name is Dr. Dan Nordmann and he is at St. Francis Hospital (the new campus) on the Southside and is the Director of the Spine Clinic there. If you would like, PM me and I can give you his phone number. He's really a compassionate/empathetic doctor and it doesn't hurt to know he has had two cervical fusions himself. So, he KNOWS what occipital/cervicogenic pain is like. And I wanted to add...I feel for your wife and anyone else who has to contend with this. Rest assured and as Dr. Nordmann has told me, he sees patients EVERY DAY with this. Good luck and tell your wife to hang in there. |
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07-17-2011, 01:08 PM | #6 | ||
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Dear Kathie, I was just surfing today and saw your post...... my e-mail is snappyten@yahoo.com anyone can contact me..... I am 60 years old and had o.n. of c-2 since I was 20 years old from a bike accident,,,,,,,,,,,, I am 60 years old today...... I have had many years of suffering with o.n. I have had four ablations and they have been great for me ,,,,,, they do not last forever,,,, they do heal.... but is better than the full blown symtoms ,,,,, one key for me for the success of the ablation is this very important for me.... when they turn the power on you must find the nerve first that is vibrating,,,, turn on the juice and try to get near the nerve to burn .... if it tingles you are near the nerve....... it may take a couple pokes to find the nerve........if you do not hit it you will have to do it again......... YOU MAY GET RELIEF FROM THIS PLACE AND THAT IS GREAT......BUT IT MAY JUST TAKE OFF ON ANOTHER HIGHWAY AND YOU WILL HAVE TO DO IT AGAIN..... I HEARD ONE GUY SAY YOU CAN BURN THESE NERVES MANY TIMES...........I GOT THE ABLATION DONE AT VETERANS HOSPITAL IN INDIANAPOLIS...... THEY HAVE BEEN GREAT FOR ME ..... I FLEW HOME FROM IRAQ AND HAD AN ABLATION DONE AND WENT RIGHT BACK TO iRAQ..... THEY ARE SUPER TO ME..... I HAVE POSTED ON m.d. JUNCTION AND THEY ARE GREAT..... I HAVE HEARD OF MORE SUCCESS IN THIS SURGERY..... I AM ON MY HANDS AND KNEES TRYING TO GET VETERANS TO DO THIS SURGERY...... ANYONE CAN CALL ME ......... SINCERELY SNAPPY10 |
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"Thanks for this!" says: | EE03 (07-17-2011) |
05-03-2009, 06:31 PM | #7 | ||
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I to am suffering from Occipital Nerve pains, and am scheduled for surgery or Occipital Ablation on May 18. Do you have any recommendations ? I also have had a major decompression performed by a neuro surgeon in Charlotte, NC, which was a disaster and has required many more surgies. You can PM me if you like Last edited by Chemar; 05-03-2009 at 06:47 PM. Reason: member privacy protection |
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05-07-2009, 07:39 AM | #8 | ||
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Robert, I haven't had an ablation to the occipital nerve, but my pain management doctor says that pulsed radio frequency is reported to work very well for RFA of the ON but the problem is most insurance companies don't approve it because they claim its "experimental." Inquire of your doctor which type he'll be doing and let us know.
Take care and best wishes for success. |
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