Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

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Old 12-05-2008, 01:32 PM #1
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Default fentenyl patches?

Anyone have experience with fentenyl patches? My pain specialist gave me a script for some and I filled it but haven't tried one yet. I am kind of scared to. I don't want to put one on and go out and have side effects. Any feedback you can give me about them would be helpful and appreciated.
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Old 12-05-2008, 04:13 PM #2
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Yes I tried them for a month or so, for Neuropathic pain of physical origin. Have to report negatively insofar as I seemed to suffer all the side-effects and none of the possible benefits. Side-effects vanished pretty quickly when I ceased using the patches. But individuals vary greatly so you won't know whether they will help in your case until you try. Best wishes.
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Old 12-05-2008, 08:34 PM #3
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Yes I tried them for a month or so, for Neuropathic pain of physical origin. Have to report negatively insofar as I seemed to suffer all the side-effects and none of the possible benefits. Side-effects vanished pretty quickly when I ceased using the patches. But individuals vary greatly so you won't know whether they will help in your case until you try. Best wishes.

Oh geez! I am also one of those people who is really sensitive to meds and has side effects. I have the world's worst headache going right now, so I am about to slap one on. It's either that or saw my head off.

Thanks for the feedback. Sorry they didn't help you.
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Old 12-05-2008, 08:37 PM #4
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I tried them, but I should say I tried only one. I got so sick vomiting from it that I took it off and never put another one on. Good luck to you.
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Old 12-06-2008, 01:27 AM #5
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I tried them, but I should say I tried only one. I got so sick vomiting from it that I took it off and never put another one on. Good luck to you.
I;ve had it on for 5 hours now and so far, so good. *knock wood* no side effects that I can tell.

Today is THE WORST pain I have been in in 10 months, aside from when I had the meningitis headache. I came home and lay down at 5 and thought I was seriously going to die. I thought my head would just explode it was hurting so much.

The patch seems to have stomped the tension headache at the front of my head pretty good, but the ON headache is still raging. I will be taking a sleeping pill tonight for sure.

I can't fugre out why this is "flaring" for lack of a better description. It feels like it's gotten 10 times worse in the last 2 weeks since the rhyzotomy. Believe me, I am NEVER doing that again!

I see my pain specialist on Thursday next week, at my weekly appointment and believe me, I will be asking her if this is normal. Either it's getting way worse or my tolerance of it is waining.
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Old 12-06-2008, 05:07 AM #6
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I'll be waiting to hear what she tells you about it. Have you tried changing your sleeping arrangement(pillows) etc.. I found that since my ON has gotten so bad that I can't use the pillows I used to and had to switch to a semi-soft pillow. I used to use the cervical ones, but for some reason they aggravate the occipital nerves, which doesn't make any sense to me. Has your doctor mentioned any anticonvulsants?

Take care
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