Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

 
 
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Old 01-09-2009, 02:26 PM #13
Kathi49 Kathi49 is offline
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Join Date: Sep 2006
Posts: 519
15 yr Member
Kathi49 Kathi49 is offline
Member
 
Join Date: Sep 2006
Posts: 519
15 yr Member
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EEO3,

Oh, don't ever apologize! I am just saying...the ON is one hateful, miserable thing to have to deal with. And it IS difficult to describe what it really feels like. I used to try to tell people it sort of feels like one of those "ice cream" headaches; you know the ones that come on real quick after eating ice cream too fast. Only that it was ALWAYS in the back of my head. If I said that or something similar, then they kind of understood it. Oh, and the Klonopin was prescribed for "burning sensations" in my hands and feet. And, yep, went through all the testing for small fiber neuropathy. Long story short Neurologist now says Central Pain Syndrome or Central Sensitization. I don't think it came on from the surgeries themselves. I think it occured because the nerve roots were compressed for waaaaaaaay to long. But that is just my own theory. Plus, I was on every med under the sun; that changed to Xanax which worked wonderfully and now Klonopin. The good thing is...for the last 3 or 4 years I have stayed at the same dose.
Oh, and yes, I take Vicodin as well but only one sometimes two a day...it makes me real chatty. Can ya tell? LOL! Hang in there and I hope you can see some relief soon. I meet with my own NS next week because my arms are in a lot of pain. So, who knows? I am guessing the C6/C7 but let me see what he has to say.
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