Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 06-14-2009, 10:13 PM #1
kalimae7371 kalimae7371 is offline
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Join Date: Apr 2009
Posts: 5
15 yr Member
kalimae7371 kalimae7371 is offline
New Member
 
Join Date: Apr 2009
Posts: 5
15 yr Member
Default Just Diagnosed With ON

I was just diagnosed with ON and had my first nerve block on Wednesday (6/10/09).

My history is cushings disease, pituitary surgery with 4 CSF leaks. Then a bilateral adrenalectomy which left me with addison's disease.

Since all of this, which took place in 2006, I have been left with dibalitating headaches that up until now the neurologist had diagnosed as migraines. Finally after describing to him the shocking sensations I have been experiencing on the back left side of my head he figured out it was ON. He was good enough to have me come straight in for the nerve block shot.

I must say that it did not hurt at all but then again I was was in so much pain that he could have given it to me in my eye and I wouldn't have cared . . . . . I just wanted to stop being shocked!!

Since having the block I have only experienced the shock a few times and nothing like the severity it was before.

Also the numbness of the block had worn off within a few hours after having it done. I wondered if that was normal?

Guess that's about it for me. Now we'll see how long it works for. Hopefully it will work forever . . . . Isn't that what we all want?

Amy
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