Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 07-17-2009, 10:11 PM #11
paininhead paininhead is offline
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Originally Posted by EE03 View Post
Kathi,

Thanks for your post. I agree with you on the facets. Of all the ones I've had done, those puppies hurt me the most. Like you, my facets are pretty inflamed so I know what you mean.

Thanks for the clarification on the SNI too.

Mac and Oliverjenniferm, I hope this helps you.

Also, Kathi perhaps you're thinking about when they cut the nerve? I know anytime they cut nerves it's badddddd....
Can you [lease tell me how you know your facets are inflamed? I ask because the doc that tried to do mine tried 3 times and then put the neddle into my dura (PAIN) Could it be because of inflamation. Where can I read about inflamed facets? Thanks much.
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Old 07-17-2009, 10:33 PM #12
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I can't tell you where to read about inflamed nerves. When my pain doctor placed the needles in the facets, it hurts like *&$%. Each time he moves the needle, it hurts like @#$* again, and this happens each time he does it...until its done. Bear in mind that you need to go through diagnostic rounds, usually two, and see the results of those before they will consider doing RFA's to the facets. Then, they do it again and in my case, it hurts even more because the nerves are "inflamed" and not happy. Several things make the nerves angry, such as bulging discs, facet hypertrophy(I think??), degenerative changes, stenosis, etc....there is a site called spine universe or something that talks about spine stuff in detail. I'll try to find it and post a link.

I hope this makes some sense. In my case, chronic neck pain preceeded all of this with spontaneous muscle spasms and such in the neck. I've been told that when the nerves are irritated/inflamed, they cause all these problems which has led to ON, as I indicated in my previous post. I really do hope this makes sense
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Old 12-16-2009, 09:53 AM #13
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About ten years ago I have had some kind of blockade of Occipital Neuralgia, but didn't work. Doctor told to me, it will be good for one year. It wasn't good for one hour.

I don't believe very much in injections and blockades.

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Old 01-04-2010, 02:51 PM #14
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Originally Posted by oliverjenniferm@aol.com View Post
Went to see mynuero. He wants me to have nerve block in occipital to totally kill the nerve and fix the occipital head pain. I told him I disscussed with my pain doctor who said that would cause permanent numbness and was dangerous because if i did injury head i woul'nt know it. I also told him about the phantom pains and neuro said it was still way to go. What are your thoughts? Anyone do this cause the stims arenot an option due to insurance. Jen
I Just had two blockers one on the right and left in the back of the skull. They were cortizone and lydicain. They go into the tissue around nerve to help with spasm. The procedure was a breeze but nothing permanent. In fact they didn't work for me at all. If they do work it can take couple days before they do and can last up to several weeks. I've read that you can have the nerves severed but I have not discussed that with my neurologist.
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Old 01-05-2010, 02:21 AM #15
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I Just had two blockers one on the right and left in the back of the skull. They were cortizone and lydicain. They go into the tissue around nerve to help with spasm. The procedure was a breeze but nothing permanent. In fact they didn't work for me at all. If they do work it can take couple days before they do and can last up to several weeks. I've read that you can have the nerves severed but I have not discussed that with my neurologist.
If someone tells you to sever those nerves, ask for a second opinion-doing so can actually leave you with phantom pain and that NEVER goes away. My pain specialist, is adamant we are NOT cutting the nerves!
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