Oh NO! I was just diagnosed with ON on my left side a few weeks back, went to the neurologist, he gave me a shot in the back of my head and it eased off. Didn't completely go away . . . I have still been having a few shocks and some pain behind my left eye, but it is tolerable. Nothing like the pain before the shot.

NOW, in the last couple of days I've been having the back shocks in the back right side of my head! Say it ain't so?!?!?!

Can that be? Can you get it on both sides? What are the odds of that?

Amy

Isn't the body a wondrous thing? Full of little tricks and surprises.
From my scant knowledge of ON the nerves go down both sides.
I was looking into it a short time ago when it seemed that I had it.
Turns out it was just very tight and knotted shoulder muscles pulling the neck muscles down and giving me awful, relentless headaches on the left side.
With remedial massages I have been able to rid myself of these pains.
Not out of the woods, as others have started up, but a bit of progress.
I'd recommend that you get yourself a remedial massage as you are bound to have knotted and tense neck, shoulder and back muscles, which will either cause or aggravate your headaches.
It is wonderful to have a clear, light head after the massage.
As it wears off I forget how good it is, so delay going back!
Will stick to a regular one from now on.

I have bilateral ON from my MS. It does indeed happen. Mine has been on both side since it started. Aren't we lucky?!?

Sorry you're having so much pain. It's not fun, I know.

Mine is bilateral too - it's been on both sides since the beginning

I've had my blocks and RFA bilaterally (in both sides) each time.

As Peter says though - everything tends to tense up. Maybe a massage would help. I have tried acupuncture and physiotherapy for the tight muscles which I get in my neck and shoulders, which makes the ON worse.

They help me short term.

Might be worth a try whilst waiting to get back to the doctor.

Personally, I can't imagine having that area massaged. Just getting my hair cut is excruciating. So much so that after I had it done, I almost fell down a flight of stairs because I was in so much pain. I managed to make it home okay and then broke a toe smashing it on the foot post of my bed as I walked by. WHen the pain is really bad, I get clumsy.

The good news is that the massage would not need to be done on the sore spot, which would be too tender anyway, but on the muscles that are causing the problem.
In my case, I was getting awful headaches that I thought were ON, but proved to be muscular from the shoulder blade area. Regular massages have stopped them, thank goodness, as nothing got rid of them.
When that had cleared up I started to get bad headaches at the top of the neck, and I assumed it was the arthritis showing up.
But no, a massage of the central back muscles stops it.
The back muscles join the neck muscles. So if they are tight and shrink a bit, they pull down on the neck muscles, hence the pain.
May not be a cure for everyone, but well worth a try. My new pain Dr put me onto it, as he has found that so many pain sufferers have muscle problems as the cause.
As it has turned out, my back muscles are a huge mess and it will take quite a while for the massages to get on top of it. Only then can I begin to stretch and exercise.
If I do it now, other problems arise.