[prairiegirl]

Hi Gang,
Please allow me to vent.

About a month ago, a new headache specialist rolled into town. I was asked to see this person. So I did. She decided after about 20 minutes that I did not have ON, but simple migraines and took it upon herself to take me off my meds that I have been on for the last year (taper me off) and have me go on topomax and another rescue med , titreing me up.

From day TWO of this brilliant plan, I had a fierce headache across the front of my forehead in addition to the pain I normally have at the base of my skull. I have had heartburn and an upset stomach that has never gone away. I cannot sweat at all, which is a nightmare because I have been having hot flashes because I have had chemo and my hormmones are all out of whack. I also have had high anxiety and no sleep, despite taking sleeping pills.

Finally, two days ago, I'd had enough and called the office and spoke to someone there about getting off this drug, which is what I am doing. I have to see this doc again on Monday and I am NOT going on anything else. I am done playing guinea pig. I am so angry that with how sensitive I am to drugs that I wasn't monitored more closely or that she wasn't more careful about what she gave me. I have already spoken with my pain specialist whom I saw last week for freezing shots-I was in so much pain I could not even turn my head-and she knows what's happened. She said it's not a problem to keep treating me and I think she thinks that the headache doc was wrong. I certainly do.

Anyway, I want no part of this headache doc. Oh and the topper? The headache doc was all chirpy about the topomax being good for weightloss which I found HIGHLY offensive. If she'd bothered to listen to anything I had said to her in my appointment, she'd know that wasn't an issue for me. Nice to know she was listening and not judging. (I am currently slightly overweight and have lost over 65 lbs and am still on the way down. I only have 35 lbs. left to lose.)

My plan is to go back on the drugs I was on before this whole mess. THey weren't perfect, but at least I knew what to expect. I am also getting an identity cane (blind cane) for when I have migraines because when I have them, I have no depth perception on stairs. Someone is supposed to be coming to show me how to use it safely. I have almost fallen down stairs twice when I've had a headache in the front of my head.

Anyway, just had to get that off my chest. I've been pretty sick, which is why I have been so quiet. I just had my last chemo (for MS, not cancer) a week ago and am recovering now.

you still out there T? I am still waiting to get in to see the neuro surgeon. It's taking forever.....