I have a new general doctor I'm seeing tomorrow and was curious what good questions/test requests I could ask about in regards to YOPD. (even if I get shot down)

I was thinking:
Low blood sugar
B6/12
Normal Pressure Hydrocephalus
Cooties etc.

Anything you can think of is welcome.

Thank you all,
Robert

if there are any non-motor issues, you could document them there too.

pass on any words of wisdom you may hear.

best,
paula

Hmmm....how about

- does he/she recommend that you take up smoking as a neuroprotective?
all joking aside, you might want to inquire about a few clinical trials that most doctors should know about like Creatine or Coq10. I would want to be confident that my PCP is up on the most basic of research in PD.

I would also want someone open to letting me try drugs off-label, like Isradipine (used to treat high blood pressure) with potential benefit to PWP.

Definitely want to see how progressive he/she is toward seeing you as a "whole" person and who will consider the obvious crap you have to experience being a young PWP like how you cope with PD while working full-time, or dating, etc.

Good luck!

Laura

Thank you for the great info.

Unfortunately, all I could squeeze out of the doc was a vitamin B test. He didn't want to interfere with my MDS... who is probably gonna refuse to do any further investigation because apparently a clinical diagnosis is as good as 100% in their minds.

I wonder if I could get my neuro and physician to talk? What a novel idea, (sarcasm) working together for the patient. I keep forgetting to be my own advocate. Maybe I could start billing the insurance companies

Thanks again,
Robert

I wonder in this equation then just who is responsible for your liver or kidneys? Really, given the meds we have to take, shouldn't our major filtering organs be checked once yearly, or do we need to wait until their functioning reaches 20% or less in order to see another specialist? All sarcasm aside, my neuro of six years has never required this nor has my PCP, so I guess it's of minor importance, or as you point out, we have to keep being the greasy wheel.

Laura