Quote:
Originally Posted by pkell
Congratulations Evonne. This is one club where we are happy to see our members lose their eligibility. I for one have lived in intentional denial for nearly ten years now, waiting for a day like the one you just had. My problem is ET was my first diagnosis so my day isn't likely to come, but you never know. One of these days someone may say to me, oooops we've made a terrible mistake.
Enjoy your new freedom and your new future, we're all jealous but terrifically happy for you.
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Evonne,
Fantastic news! I am in the same boat as pkell in that I had an initial ET diagnosis as well- though I presented assymetrically, so I had doubts and troubles from day one. I went on with an ET diagnosis for six years- my tremor was controlled adequately by beta-blockers and Mysoline. Another differential diagnostic aid is the alcohol test- do you have less tremor after a drink or two? I recall those silly drawing tests, I called it the 'snail test', with fondness now (it is actually an Archimedes spiral test)- I'd give anything to go back to that over the damn finger or foot tapping test.
I recommend joining the IETF (International Essential Tremor Foundation) and Tremor Action Network. While yes, ET, is benign, it can make life rather tough at times and you might want a support group and to know the latest research out there.
Best to you,
Laura