Parkinson's Disease Tulip

 
 
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Old 12-24-2009, 02:19 PM #1
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
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reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default PD think tank-input requested

I am thinking about something that will take some work and that may already exist somewhere. If it does, then I don't want to waste the work reinventing the wheel. So, I thought that I would try to describe it and ask if anyone knows of such a group already doing it.

While all of us are interested in PD, some of us burrow in quite deeply. We become scholars of the subject but often have areas of ignorance that weaken us. We also tend to have our own pet theories which can cause us to overlook valuable information. And, when we do finally give up, our work drifts away into cyberspace and is lost.

I've been toying with the idea of a blog ring of such folks. Each of us in his own tower grinding his particular axe but also reading and adding comments to the others in the ring. If done right that should build in a sort of self-correcting mechanism since the other ring members could point out things overlooked, etc. It would also foster an "aha" effect where pieces of the puzzle one member had worked out might suddenly click into place with those of another member.

Can anyone point me to such a critter? Or someone who is running a blog that might be interested in such an approach? Thanks.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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