My patient wanted me to start this thread. She burns up all year round. I, on the other hand, wear two pair of long-johns/ two or three layers of tops, and a coat or heavy sweater in her house. Most people that come to visit find the house cold, but the cold weather has bothered me excessively this year. It seems like my core gets cold & I have trouble warming back up (bone cold!). Any of you have simular trouble & what do you do to either get cooled off or warmed up???? A HAPPY & HEALTHY NEW YEAR TO ALL

Aunt Bean -

I am always hot hot hot! The heat and the sweating that come with it are the physical manifestations of PD that I hate the most. Once I start sweating, I can't stop - it pours from my head, drenches my hair, and can take hours keeping still in a cool area to dry out and cool down. One neuro I talked to said we lose the ability to sweat from our hands and feet; through head and trunk only; this is true for me!

What do I do for this? Number one - live in the Pacific Northwest, land of mist, drizzle, showers, sprinkles, straight-out rain, and forever-gray skies enlivened by the occasional "sun break" for 9 months of the year. And despite the water-laden nature of our atmosphere, our summers (3 months; July-September) are sparkling, breezy, humidity free and rarely top 80 degrees.

I have learned to deal with it by 1) always traveling with a hand held electric fan, and also a hand-pumped one with a water bottle attached, 2) keeping a bandanna around my neck or in my pocket for quick absorption, 3) keeping my home as cool as possible, 4) keeping hydrated, 5) avoiding the South and Midwest (I am already anxious about a meeting I have to attend in North Carolina in late February).

In the winter, I rarely wear a coat - maybe a sweater - I was actually in need of one last week during an unusual run of several days below freezing - like a true Seattleite, I never carry an umbrella - just walk between the drops. In the summer it's sandals, shorts, skirts and t shirts. I stay out of the sun, unless I'm doing something refreshing like boating or swimming (it was so hot at the Unity Walk in NYC last spring that I ditched the walk and sat in the shade of the PDF booth with my water spray fan).

Not only is it uncomfortable, but my extreme sensitivity to heat interferes with my desire to exercise, because it occurs no matter how hydrated I am. And it increases with anxiety when I worry about "what will I do when I start sweating in this very important meeting?" etc etc etc. I hate it.

For any of you out there who happen to have an interest in astrology, my chart burns with fire (2 grand fire trines), so my woo-woo, metaphysical side sees an archetypal, universal, destiny loaded with possibilities to walk a fiery path; a spiritual challenge to master and overcome; my scientific, rational, academic side sees someone with Parkinson's disease and an unbalanced metabolic system that is a physical challenge to master and overcome.

I am always looking for tips to keep cool if anyone has them.

Oh, and did I mention the possibility of menopause?

Happy New Year Everyone (yikes! the days are getting longer; the light is good - but I dread the accompanying heat!)

Hi,
I am the opposite of Indigo, I am always cold, everyone else is warm and cosy and my hands and feet are cold. Except in the very height of British summer, when I cannot cool down for love or money...... I have to avoid going out in the cold because it takes hours to get reasonable warm again. I also do not feel myself getting cold, so it is only when my core is really cold that I realise I am in trouble. Heat is the same thing, I do not realise things are really hot till too late, so burned myself very badly leaning on a radiator. Something is topsy turvy with my regulatory senses! I think this has been discussed a few times on the boards over the years, and was put down to autonymous systems going out of whack.....

Happy new year to all
Lindy

Sounds like me. Seems like I need a new thermostat...but cold bothers me much more than heat this year. We are having an especially cold winter so far...unusual for east Tennessee. A friend suggested insulated clothe Aunt Beans from a company called Patagonia..may have to get some!

I'm often cold. I'm now in my low thermostat house, wearing long underwear, a turtleneck, fleece sweater and down vest. I find that when I'm cold, my body tenses and all movement is more difficult. I can't do tai chi when I'm cold -- nothing flows. For me, it's very important to keep my back and neck warm. I often sleep with my neck wrapped in a muffler.

I spent two hours last week in my car on a very cold day waiting for AAA to jump start the car and was pleasantly surprised that I warmed up quickly when I got inside. I think my down coat saved me.

Now that's probably more info than you wanted but it's my experience.

Happy New Year -- it feels like many connections are flowing.

Katherine

I guess what I need is a down vest! I bought a new jacket after Christmas when reduced to 60% off, but it is still not warm enough. Same here, when my neck/shoulders especially are cold ...like now, my tremor starts in my neck and goes down my arms. I usually have 2 pair of long johns on plus layers of top clothes...BURRRRRR time to get dressed for the day. Stay warm ya'lll

SOCKS: This might sound a bit weird, but if my socks are comfortable and made with mostly cotton, I’m comfortable. But if my feet gets cold (socks made of synthetic material), I'm cold. Or if my feet get sweaty (wool socks), I'll also feel sweaty and uncomfortable.

Maybe it’s HOT YOGA: I used to sweat A LOT, mostly in my transition time of when my meds/herbs were fading out and my new dose was fading in, and it didn’t matter what kind of socks I was wearing. I would get my t-shirt absolutely soaked and would have to change it, sometimes three times. But this gradually stopped once I’ve started taking Bikram Yoga classes about 6 months ago. It’s 90 minutes of yoga in a room heated to 104 degrees with 50% humidity. I must sweat away a gallon of sweat. The towel I use on my mat would get absolutely soaked. Anyway, I think that might of cured(?) my sweating problem. I go 3-4 times a week. Maybe I sweated so much during class, theirs nothing left, who knows.... I haven’t had a another sweating bout for months now.
Or maybe this is just one more symptom I can check off on my path to recovery. In some areas I’m still improving, but in some areas I still needs to rebuild.
I did something really stupid over the summer. I went bungie jumping and injured my back, I’m still suffering from it, IDIOT. I was doing pretty good over the summer; hiking, kayaking, biking, swimming, etc. And now my sciatic nerve is killing me. I can still do yoga (just have to avoid any serious back bends), but if I have to walk, I can only walk for a few minutes before my back and sciatic nerve starts killing me. I’m seeing specialists for my back and it’s slowly getting better. It like I was taking baby steps forward in helping my body recover from pd, and now I just took a giant step backwards from this back injury. That's ok, it’s just another bump in the road.

Enjoy life always, it couldn’t hurt. Just don’t bungie jumping.
Max

I'm usually hot - hot - hot. If I chill, I know I'm getting a cold or something.

I like your rows of fava beans
Peg

Indigogo, this sounds exactly like me. Even in winter, I often arrive at work drenched in sweat, my hair looking wet. On the bus I often need to remove several layers of clothes. After I arrive at work, it takes me hours to cool down. The extreme sweating occurs when I do any kind of exercise, like walking. But it often happens at home, when I'm resting. And then an hour later I feel extremely cold and need a hot drink to warm up inside.

I think I get cold when I cool down from the hot spell because I've turned the heat down. OR, maybe my thermostat is screwed up.

I'd never heart that about our ability to sweat from hands and feet. Does that cause one to feel overheated, too? Because when I have the sweating episodes, I feel like I'm burning up inside, so hot I can't stand it. I don't think it's a hot flash. I've been on Arimidex for five years, so my estrogen is gone.

How does the inability to sweat properly cause one to feel hot, hot, hot??

Thanks.
~Zucchini

you asked this question: How does the inability to sweat properly cause one to feel hot, hot, hot??

Being a former science teacher, you drew me in. Perspiration is a "cooling" process. I know that sounds weird, but what is happening is as the "sweat" evaporates, your body is cooled. That's why the desert hare has such huge ears - more area to help cool him off as his ears sweat. And did you ever wonder why pigs roll in the mud? They don't have sweat glands!

Now you can be on Jeopardy - lol

and maybe for those of us that are hot-hot-hot, rolling in the mud is an option. (I must be REALLY tired!)
Peg