Parkinson's Disease Tulip


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-08-2010, 06:33 PM #1
bdpdsmith bdpdsmith is offline
New Member
 
Join Date: Feb 2010
Posts: 5
10 yr Member
bdpdsmith bdpdsmith is offline
New Member
 
Join Date: Feb 2010
Posts: 5
10 yr Member
Default PD or paranoia?

My spouse has PD and I am wondering if I have it as well. She was dx'd about five years ago and about 2 years ago, I began having these internal tremor feelings which went away after awhile. They were mainly in my upper body and would sometimes wake me up from sleep, seemed like my whole shoulder area was shaking, both sides. It was so weird, but now gone.

Recently I have noticed as I am falling asleep my foot or sometimes a hand will flail out, sometimes it is even my entire shoulder jerking forward or backward! Right or left, there is no pattern, and it doesn't always happen, just sometimes.

Then I noticed awhile back that my right shoulder was hurting. I do a lot of physical work so I figured it was that...until I remember my spouse having a sore shoulder a few years before dx...this freaked me out. Sometimes it really hurts and sometimes it just aches, and sometimes it's not even there.

I have also noticed that I have been holding my shoulders up, hunched up, which I think I do because I am anxious and now it has become a habit. This makes my upper back between my shoulders sore and now the soreness has spread to my neck as well. Could this be PD?

A twitch, intermittent and in different fingers on different hands, is what is really freaking me out, though. I noticed a few months back that my left thumb would occasionally twitch, just once or twice, then stop. Very intermittent....one time the third and fourth fingers on my left hand twitched side to side, which was weird to watch. This was months ago and has not recurred.

Today though, my pinky on my right side began twitching and is still going. It goes when I lay my hand down over the armchair, very erratically. It comes and goes, is not rhythmic at all, but I've never had a twitch last this long and am scared to death. Usually there is a twitch or two and then it's gone, and on my other hand. But this one seems different. I know there are so many tremors and the PD one my wife had as her initial symptom was in her thumb and pretty regular, not erratic and spastic like this one.

I do a ton of research on PD and care for my wife so I know a lot about PD, probably more than I should. We have two very young kids, starting late in life, and since her dx I have been worried and preoccupied, like most, OK, obsessed, about how we will handle this and how they are doing. Every new little symptom she gets, I superimpose on myself and wonder if I have that too. Backaches, is that PD? Hip soreness, is that PD? I wonder if I am being paranoid with worry or there is reason for concern.

I don't have any fatigue like my wife had early on, no foot dragging or anything like that. I know everyone is different, yet I am very worried. What boggles my mind is that we are both in our forties so for me to exhibit symptoms of PD, if this is what these are, so close in time to hers, makes me really wonder.

If anyone has any input please share. I am not willing at this point to go to a neuro because if it is PD, I am not at the point of needing to take any meds and nothing I have read anywhere indicates that any drug can delay or stop progression.. plus I don't want to know definitively that I have PD, if that's what this is (denial is bliss, as they say). If I'm wrong, I'd love to know what there is out there other than yoga, meditation, antioxidants, exercise (we do all of this already for my spouse), that can help.

I am very healthy and neither of us are drinkers or smokers or drug users, we eat very well so it baffles me that two above-average healthy people would be hit within a few years of each other with PD, especially young onset. I have done some research on this and haven't been able to find any other cases like this, there are some where the couple is much older at dx, but not early onset.

Thanks everyone. I have to say this is a most educated and supportive forum, I am glad to be able to ask this question to such a great group of people.
bdpdsmith is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
MRI Paranoia...help! winter_luna Epilepsy 24 07-07-2013 03:33 AM


All times are GMT -5. The time now is 01:37 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.