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Old 02-14-2010, 07:51 PM #1
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Stitcher Stitcher is offline
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Join Date: Aug 2006
Posts: 2,136
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Default Clinical Trials

I have a couple of questions and would like as much feed back anyone would like to provide. While I have my own personal perspective in five trials I have participated in, I would appreciate any comments that I can
include along with mine (anonymously, of course.)

I am preparing to be on a patient panel where I, along with others, will be asked questions about participation in trial(s); a patients perspective. Only 30 minutes are provided for this part of the conference. The attendees will be clinical trial staff and I have no idea the number of attendees at this conference. The conference is put together by Cambridge Healthtech Institute (CHI).

Please ONLY those who have participated in a clinical trial, or multiple trials.
  • What motivated you to participate?
  • How did you find out about a trial that you participated in; e.g. physician's office, NIH clincialtrials.gov, PDtrials.org, from another PWP.
  • What, if anything, did you wish you had been told about the trial?
  • Was the Informed Content process complete enough for you and/or a family member who may have gone through the IC process with you?
  • Were you given information about contacting a trial staff member when you needed to do so? If so, what was the response time, and did you feel that the staffer listened to you and took you seriously?
  • What did your expectation about the trial staff; the pricipal investigator (the physician you saw), the other medical staff, the testing staff, etc.
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall

I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller
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