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03-15-2010, 06:24 PM | #21 | ||
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[QUOTE=ajrlsc@hotmail.com;632959]... I sit here today and 1) I have stabilised on my drugs ie my decline has stopped 2) The rigidity in my neck is virtually gone 3) I have much much more energy 4) I started to catch smells yesterday Hope it lasts. Wishing you the best. Thanks for the update Girija |
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03-15-2010, 11:57 PM | #22 | ||
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I remember the first heart transplant patient. His second heart failed from heart disease also. So we have two problems - first finding out what it is for each of us individually that has caused our PD - immune system, toxins, stress enzymes missing, viruses and so on. The second is to get our dead cells replaced.
From what I've read the cells can be replaced with fairly good success but in the small studies I've read they die again. Of course one could continually get replacements but that would not be a fun thing to have to do although I know people who go through multiple heart bypass surgeries including my own mother in law. I also have managed to stabilize my PD fairly well but I have problems with food interfering with my meds so severely that I'm like two people. Three years ago I could not walk much at all even with meds. Now I'm walking a lot more and can walk even without meds. I'm doing a lot more also on a much lower dose. Can't say why other than a diet change. So good luck and may you continue to improve |
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03-16-2010, 08:33 AM | #23 | ||
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03-16-2010, 04:20 PM | #24 | ||
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I really have the utmost respect for people such as yourself, Peggy, Jim, Carolyn, (apologies to any I have missed). Between you you have had stem cells, gene therapy and retinal cells transplanted into your brain. You have no idea what might happen however you plough on regardless of the risks.
Building on your point re. UK Neuros picking up on your treatment, have you discussed this with your Neuro and if so what is his position. A line you may care to consider is talking to Tom Isaacs, founder of the CURE Parkinsons charity. http://www.cureparkinsons.org.uk/Home_1.aspx?id=0:36722 He will be able to get you in front of a lot of influential people with a view to taking this treatment seriously. If you wish I can introduce you to Tom. Good luck to you buddy, Neil. |
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