Parkinson's Disease Tulip


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Old 03-15-2010, 06:24 PM #21
girija girija is offline
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[QUOTE=ajrlsc@hotmail.com;632959]... I sit here today and
1) I have stabilised on my drugs ie my decline has stopped
2) The rigidity in my neck is virtually gone
3) I have much much more energy
4) I started to catch smells yesterday
This is good news!
Hope it lasts.
Wishing you the best.

Thanks for the update
Girija
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Old 03-15-2010, 11:57 PM #22
roderunner roderunner is offline
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I remember the first heart transplant patient. His second heart failed from heart disease also. So we have two problems - first finding out what it is for each of us individually that has caused our PD - immune system, toxins, stress enzymes missing, viruses and so on. The second is to get our dead cells replaced.

From what I've read the cells can be replaced with fairly good success but in the small studies I've read they die again. Of course one could continually get replacements but that would not be a fun thing to have to do although I know people who go through multiple heart bypass surgeries including my own mother in law.

I also have managed to stabilize my PD fairly well but I have problems with food interfering with my meds so severely that I'm like two people. Three years ago I could not walk much at all even with meds. Now I'm walking a lot more and can walk even without meds. I'm doing a lot more also on a much lower dose. Can't say why other than a diet change.

So good luck and may you continue to improve
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Old 03-16-2010, 08:33 AM #23
lurkingforacure lurkingforacure is offline
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Originally Posted by roderunner View Post
I remember the first heart transplant patient. His second heart failed from heart disease also. So we have two problems - first finding out what it is for each of us individually that has caused our PD - immune system, toxins, stress enzymes missing, viruses and so on. The second is to get our dead cells replaced.

From what I've read the cells can be replaced with fairly good success but in the small studies I've read they die again. Of course one could continually get replacements but that would not be a fun thing to have to do although I know people who go through multiple heart bypass surgeries including my own mother in law.

I also have managed to stabilize my PD fairly well but I have problems with food interfering with my meds so severely that I'm like two people. Three years ago I could not walk much at all even with meds. Now I'm walking a lot more and can walk even without meds. I'm doing a lot more also on a much lower dose. Can't say why other than a diet change.

So good luck and may you continue to improve
What diet did you switch to? And do you mind sharing how much you were able to reduce your meds? Thanks.
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Old 03-16-2010, 04:20 PM #24
aftermathman aftermathman is offline
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Default Great news Andrew ...

I really have the utmost respect for people such as yourself, Peggy, Jim, Carolyn, (apologies to any I have missed). Between you you have had stem cells, gene therapy and retinal cells transplanted into your brain. You have no idea what might happen however you plough on regardless of the risks.

Building on your point re. UK Neuros picking up on your treatment, have you discussed this with your Neuro and if so what is his position.

A line you may care to consider is talking to Tom Isaacs, founder of the CURE Parkinsons charity.

http://www.cureparkinsons.org.uk/Home_1.aspx?id=0:36722

He will be able to get you in front of a lot of influential people with a view to taking this treatment seriously.

If you wish I can introduce you to Tom.

Good luck to you buddy,
Neil.
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