See the link below to follow the experience of a PWP who went to Germany for stem cell treatment.

http://mypdstemcellexperience.blogspot.com/

Neil.

this is interesting and may have been let down by a C$$p title.

Neil.

Hello Neil

I have read many testimonies of people getting their cell treatment in Cologne and getting NO IMPROVMENT at all.....

i suspect this blog to be totally fake (might be written by someone from the laboratory itself )
the picture's profile is so small..
impossible to formally identify this blogger,
he does not give his full name...(just an inital )

all this seems suspicious to me.

And for the record ,this place in Cologne is owned/financed by a guy from Azerbaîdjan,who first was "curing" from Azerbaîdjan,and moved to germany to project a more serious/european credibility.

I never heard any major stell cem discovery coming from Azerbaidjan .....

suggesting the clinic would directly or indirectly forge testimonies is a big claim.

Am I right in assuming that you know more than you have said ?

If so do you wish to share more information ?

Neil.

p.s. I have emailed the blogger requesting more info to support authenticity. We shall see what comes back !!

the PWP seems genuine.

A copy of his e mail to me is attached.

"Hi,

I am happy to talk to anybody about my experience if it helps; as
regards authenticity it is definately real!

If anybody wants to go online and chat to me further they can find me
most evenings on ajrlsc@hotmail.com.

I will not give out my home details for obvious reasons but the
details below may be of interest:

My consultant is Prf. Hawkins,; I see him at Sandy Lane, Newcastle.
My PD Nurse is
Julie Pickin MA
Clnical Nurse Specialist Parkinsons Disease
UHNS, Neurology

Regards

Andrew"


Neil.

When this person,Andrew, initially posted on The Parkinson's Disease Society Forum I was very suspicious as he had had P.D such a short time. I cannot remember how long but we are thinking months rather than years.When I mentioned this he said he was not going to post anymore, but we could follow his blog. He said he was doing it for his children and the child that was on the way.A risky undertaking for any one let alone a parent of young children.Well. he has got attention.

Dear EnglishCountryDancer

*edit*

I have had PD since August 2008.

My demise has been reasonably rapid and I have tried to stay positive.

I decided to opt for Stem Cell treatment as I felt the potential benefits outweighed the risks as I would soon have to give up work and my quality of life with my children was not good enough.

What I have not posted is that I watched my grandads demise with PD and know only too well the path I am on.

I am NOT looking for publicity; but I did decide to post my experiences as I felt other people should at least be able to take a view for themselves.

Will it work - I dont know!

Do I think (hope) it is working - yes.

Will there be long term downsides well I dont know but I do know what the alternatives are.

Is that enough for you??

Andrew

just reminding everyone that we welcome open discussion here but would prefer that any problems from other forums rather remain there, and not be brought over here

We welcome our new member above and hope everyone can keep this discussion respectful, and if disagreeing, please try to do so agreeably and all should be fine to have what will hopefully be an informative discussion

thanks

ps here are the guidelines
http://neurotalk.psychcentral.com/showthread.php?t=1293

Hi,

I am happy to debate my experiences with anyone if it helps but please dont judge me; as with most people on these forums I am trying find my way on a path I did not choose for myself.


Andrew

Hello Andrew,
Thank you for posting your experiences with stem cell therapy and welcome to the forum. I am happy to hear that you are feeling positive about the treatment and I certainly wish it stays that way for you. Please continue to share your experiences.

Do you mind sharing the details of your therapy (cell type, site of injection, number of cells and anything else that seems important)? Or is it already there in your blog?

Thanks again and hope you continue to post your experiences.

Girija