Parkinson's Disease Tulip


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Old 03-24-2010, 12:04 PM #1
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Thumbs Up Book writing - need your input!

Hi, forum members! As part of the NeuroTalk Writers Team, I am posting this for pkell. PLEASE consider submitting something. *

As many, but perhaps not all, of you know several of our group here at NT have joined together to write a book about Parkinson's Disease from the viewpoint of those of us who have it. This is not a text book or a scientific treatise, but rather an "up close and personal" book about what we have learned from each other about how to live with this condition. While we are including information regarding the diagnosis and treatment of PD, our emphasis has been on the personal journey we are all on and how our internet community has influenced the course of that journey.

On behalf of the Book Team, I would like to extend our heartfelt thanks for all your well wishes and encouragement. I would also like to report that we are making steady progress and our best estimate is that we are, at present approximately half-way through the project.

For all of us participating it has truly been a labor of love and because of that, we would like to extend to each of you an invitation to submit a contribution to the book. It can be about something you feel you have extensive or particular experience with or about something which causes your passions to rise, your heart to break, or your hopes to soar.

Generally, submissions should be under one thousand words; however, exceptions can be made on a case-by-case basis. Speaking for myself, this has been a transforming experience, one I would love to share with each of you.

If you would like to submit something please PM me and we will make arrangements.

Again, thank you for your support and well wishes.

Pam - user name pkell for pm’S (Private Messages)

*Note: Not every submission can become a part of the book, and please be apprised that with any submission, you are granting the team permission to edit at will.

THANKS SO MUCH!
Peg
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Old 03-24-2010, 09:10 PM #2
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Default Bumping up!

We already have a taker! Thanks and keep 'em comin'.
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Old 03-30-2010, 11:31 AM #3
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Bump!!

Would love to see more takers for this

Lindy
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Old 03-31-2010, 03:29 PM #4
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Default Bumpity Bump!

We're getting some good proposals to write for the book about BrainTalk/NeuroTalk online communnities.

Now is the time

Peg
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Old 03-31-2010, 11:02 PM #5
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Default Please think about it

Come on every one. There are so many of you who are such fine writers and have terrific contributions to make. I have read things on this forum that made me cry and laugh and get so angry i could have beat up Jessie Ventura.

We do want your contributions, especially those of you from countries out side the U.S. and from the newly diagnosed or from anyone who has an interesting perspective on parkingsons disease. Knowing that the world of this disease does not represent one truth but many truths we want to represent as many of them as possible. Thanks again for all who have participated.

Best,
Pam (pkell)














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Old 04-01-2010, 07:23 AM #6
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Default PwP from around the world........

The book team would most especially like to hear from those of you who live outside of North America, and your experiences with PD. This does not need to be a long piece of writing, and the 1000 word mark is the upper limit not the lower. We know that there are people who only come and visit, and it would be nice if you could participate in this, so that we can present a really global view of what parkinson's looks like from where we stand........ everyone who has participated in this project has found it rewarding, and the response so far in terms of people outside of the forum has been quite outstanding, and there is real interest in getting this to print, and helping to move the understanding of PD towards a clearer picture.

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Old 04-01-2010, 12:17 PM #7
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I would write about the fava experiments and none-clinical trials for you
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Old 04-13-2010, 11:09 AM #8
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Question

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I would write about the fava experiments and none-clinical trials for you
Can I write a paper about the fava bean research and give it to you?
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Old 04-13-2010, 03:14 PM #9
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Default Aunt Bean

Yes, of course you can give the writing to me I think it would make for interesting "alternative" therapy discussioon.

Sorry to be so long in responding. We have been out of town - WAY out of town, on a cruise to the Bahamas. It was great, but I am so behind in my advocacy work (not to mention housework - yuk!)
Peggy
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