Greetings, all!

I guess this is a return of sorts for me. When I was diagnosed back in 2000, I dwelt in the NeuroTalk community's PD forum as "Radiobill." But I sorta fell away from it. Don't know why.

Now I'm back!

It's been an interesting time, especially the last year. From about 2003 until recently, I felt like I was doing well enough -- symptom-wise -- to lay off the meds and thereby avoid the dyskinesia. Then I went to work for the government and chose an insurance company that insisted I see a regular neuro doc instead of a movement disorder specialist. For the past year we've been doing battle as to whether or not I had PD, or carpal tunnel syndrome, or cervical stenosis, or peripheral neuropathy.

"One thing I can say with almost absolute certainty," this doctor said. "You do not have PD."

So... after a year of declining neurological fortunes... I switched insurance companies and am now being seen by a fine movement disorder specialist who said, "With all due respect to your former doctor, you DO have PD -- and a pretty classical case of it."

I'm on Stalevo 100 and maintaining nicely.

I look forward to participating in discussions and getting to know each of you.

Have a great weekend, and thanks.

Jump on in Bill. The water is fine. It looks as though quite a few from the past are dropping in lately. I have been pretty inconsistent, and like you, I don't really know why. The discussions don't seem to be quite what they used to be, but perhaps we can start one up. What would you like to talk about?

michael b.

Well, one might be to discuss a tendency amongst ourselves to pretend we don't HAVE PD. I know I was convinced that my problems were probably something "else" -- something more curable. And danged if my previous neuro doc didn't try to comply. But then explain the fact that an hour after taking my first Stalevo 100 in a year, I felt pretty much "OK" for the first time in a year.

Now I just wanna make up for lost time, read up, get involved in clinical trials, that kinda thing.

When I get tired of having Pd, I change its name to "Stubbed Toe." Therefore, if anyone here hears me referring to my "Stubbed Toe," I am merely tired of having Parkinson's disease, and that is my form of denial. Again, like you, I don't know why.

If you are looking to get into clinical trials you might want to look at the Pipeline website.

http://www.pdpipeline.org/index.htm

michael b.

Thanks for the website. I'm currently waiting on a return phone call on a clinical trial regarding DBS in early PD.

There's another great site for all sorts of clinical trials -- http://clinicaltrials.gov -- in case anyone's interested.

Welcome back Bill!