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Old 07-21-2010, 01:30 PM #1
paula_w paula_w is offline
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I have never remembered to ask. I've seen them and kinda score myself but maybe I'll remember to ask next appt - who knows?
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"Time is not neutral for those who have pd or for those who will get it."
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Old 07-21-2010, 03:07 PM #2
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Debi-
PLM computes both for their database. Mine, for example, is H&Y = 3 and UPDRS = 16. I can't say that I ever use it because I've never been clear on whether one should be medicated or not.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 07-21-2010, 05:37 PM #3
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I'm in the UK but believe these scores are used here too. Though I have been tested have never been told scores.

Lindy
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Old 07-21-2010, 09:47 PM #4
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I've never paid any attention to the scores. I watch my doctor write down the numbers as I respond to her questions (at this point still 1s and 2s). The total would be meaningless to me - but I admit that I do see an increase in the numbers as time goes by.

But I'll see her again in a couple of months for POSTCEP and I'll pay more attention then.

Jean
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Old 07-22-2010, 04:40 AM #5
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Debi,

no idea and never been tested to my knowledge.

Neil.
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