Bandido 1 said:...
patient input.
www.parkinsonscreativecollective.org

Better yet....order the book now. Bob C[/QUOTE]

They quote Paula on the website. Order the book? Is that the book that has been mentioned here before ?

Creative Collective? Who are these people? Take me to your leader! And clearly there is a Bandido 1, but are is there also a Bandido 2, and a lot of numbers after that?
Yes, it has to be more fun to be in the revolution that to not be in the revolution.
Parkies of the World, Infiltrate! And then co-opt the Normals.

I only know what these kind of testing scales are like because of having a son who has had similar tests all his life. My testing was done by someone in a white coat, right before having an apomorphine challlenge, I was told what was happening, she did all sorts of scoring for things, declared that she thought I was developing a sensitivity to sinemet, told me she would be going on maternity leave, and I have never seen or heard from her since! By the time they actually got round to doing some of the mobility bit for the challenge, it was about 20 minutes too late, and I was pronounced not responsive to it.......

All these subjective things........

The thing I remember very well from that day is that she shoved a whole load of stuff and a large glass of water slipped off the edge of the table, and I moved faster than I had done in years - and that was before they administered the apo....... the glass didn't hit the ground of course, I caught it and got soaked...

Hi, Debbie,
Having seen a fair few of your posts, I suspect that this question is coming FROM somewhere......

Is this how researchers rate and log progress through studies?

I don't see how it can be a great way to do things.

If someone said 'I will see you every six months, and rate you, but take your meds at the same time and I will see you at the same time' still some people might display widely fluctuating rates of ability. Especially if they had cheese for lunch.....

As someone (thanks, Kath, for saying it for us all!) said just today, a PD patient could be different hour to hour!

My doctors preferred method of seeing how I am doing is getting me to walk 2 yards to the door, turn around, and walk back with my arms stretched out in front of me, like something from Carl Hernz's pd zombie movie, on the WPC site now! If you haven't seen it yet do so!

Lindy

Bob Dawson..as with all puzzles.....here are some clues....
we have no leader
the authors are lurking ...close by
bandido1 was once thought to be a tv personality.....love that B--.

They quote Paula on the website. Order the book? Is that the book that has been mentioned here before ?

Creative Collective? Who are these people? Take me to your leader! And clearly there is a Bandido 1, but are is there also a Bandido 2, and a lot of numbers after that?
Yes, it has to be more fun to be in the revolution that to not be in the revolution.
Parkies of the World, Infiltrate! And then co-opt the Normals.[/QUOTE]