Parkinson's Disease Tulip

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Old 07-23-2010, 05:55 PM #1
paula_w paula_w is offline
In Remembrance
 
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paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
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I sincerely hope that isn't the only measures they use for clinical trials, especially when compared with a placebo. Sounds like you are understanding where we are coming from and i won't hold you to that just accept my compliment.

ha great minds think alike and then there are peg's and mine.
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paula

"Time is not neutral for those who have pd or for those who will get it."
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Old 07-23-2010, 06:47 PM #2
lindylanka lindylanka is offline
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lindylanka lindylanka is offline
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Thanks Debi,

For more than just asking, but also being a part of something that recognises that there are inadequacies in the way information about PD is acquired. The patient IS the key, and unless asked in the right way the questions will get fuzzy answers that are open to subjective interpretation, or misinterpretation.

The scales are weird anyway, you could be stage 4 when you get up in the morning, and practically normal when everything is working right. Even the patient is not really aware of what stage they are under the medication.

You are on the right track, this is the way that research design needs to be rethought.

Best Wishes
Lindy
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