Parkinson's Disease Tulip


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Old 08-08-2010, 12:29 AM #11
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Maureen
It is so good to hear how you are making out. I think of you often and wish I had not lost your email or phone number. I am sorry for your situation but memories of you have helped me to look at myself and get it together as best i can. Strangely.used in a weird sense I have been battling Non- Hodgkins Lymphoma for almost 4 years now and am coming into the the hard part from now on. I had been given 2 years at the most and have doubled that so I can't complain, or can I?

I go to the doctor and she says the same old mundane expressions every time. "How are you"? I feel like just screaming at her and asking that she tell me, she's the doctor!

But what you personally and all here are going through is no different then when you and I had Osteomelitis even though 20 some years apart. Time passes and nothing changes.

There is no medication or treatment for this that I have nor for Parkinson's that is not going to alter my entire being and for this old lady i will take the days left with the mind I have and just face it whatever 'it' is.

MO SO GOOD TO SEE YOU HERE AGAIN.
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Old 08-08-2010, 04:32 AM #12
Bob Dawson Bob Dawson is offline
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Default everybody slow down!

Inspired by Reverett 123 i have been dancing like crazy for 6 years and music all the time...now just joined Continuum Movement -- with excellent results and much more to learn
and SLOW DOWN everybody y'all moving and thinking and reading and speaking and loving too fast
slow down - it's faster because you go straight in
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Old 08-08-2010, 01:42 PM #13
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Quote:
Originally Posted by Onward View Post
Hi there, Mo... nice to meet you!

I'm pretty new here, and mostly lurk. I had a PD diagnosis for several years... This past spring, my MDS changed it to Atypical Parkinsonism, with a very positive outlook for the future. I never believed the PD diagnosis to be correct (based upon my knowledge of the facts), and expected this would happen eventually, but even so, it was very stressful and unsettling. Looking even further back, the initial PD Dx was absolutely devastating to me and my family, and the drugs used to treat it were (and still are) just about as bad. Whether I have/had it or not, PD destroyed my life, but I'm takin' it back the best that I can.

I was exposed to manganese dust and fume many years ago. I've learned it's impossible to get objective medical treatment. Neurologists and traditional Western medicine in general are stuck in the clutches of big pharma, insurance companies, lawyers, etc., and so their services now comprise only a portion of my health care. I'm doing much better, now, as a consequence.

Perhaps unsurprisingly, therefore, I share your interests in alternative therapies and healthy strategies. Yoga is definitely in my future. I've been lucky to have experienced some benefits from therapeutic massage in the past, and hope to have the opportunity again. I'm currently in the process of weaning off of sinemet with my MDS's approval, and let me say-- it's tough. But then, after reading this forum, I knew in advance that it would be. (Thanks, all, for that.)

I'm limited to what I can share on the forum, but, despite a low level of public participation, the first-hand information and observations from others has been incredibly helpful. No: "enlightening." And while it's true that what works for one person may not work for another, I've had my mind opened more than once from having read the posts on this forum.

Much of your post, Mo, evoked feelings and thoughts of awakening after a very long nap, for instance, and of becoming newly aware. I identify, and look forward to reading more from you.

--Onward
Onward,

just in case you hadn't come across this finding for manganese toxicity and pd:

http://www.medicalnewstoday.com/articles/44647.php

regards,
md
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Old 08-08-2010, 10:32 PM #14
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Default Hi Mo!

You sure haven''t been just sitting around on your duffs since posting here! I saw a news video about you in a dance class. Can you share that with us???

I found this one: http://www.youtube.com/watch?v=Abo-vp2yf9g
but paula showed me one that had you being interviewed.

It's so good to have you back, Mo!
Peggy
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