Parkinson's Disease Tulip


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Old 10-25-2010, 03:40 PM #1
soccertese soccertese is offline
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Default Viva! Stem cells revive dying brains

i'm skeptical to say the least
http://timesofindia.indiatimes.com/c...ow/6811649.cms
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vspot (10-26-2010)

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Old 10-26-2010, 12:44 AM #2
ol'cs ol'cs is offline
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Default this is what..

Quote:
Originally Posted by soccertese View Post
I've been yabberin' about for over a decade on this site. Soccertese, you have travelled this road as long as i have an we've seen the false starts, the "too good to be true's", and suffered to the point of little hope, but hope this is, so, i'm not sceptical. If these people have said that they have done it, then for once in my life i BELIEVE in a final solution to fore and mid-brain neurodgenerative diseases through "some kind" of an "implant of the correct cells to the correct areas". IMHO, it's the "only" way.
So lets raise a cheer that maybe , just maybe, we are finally on the right path, for some abatement of the worst PD symptoms. Sure our lives are made difficult by PD, but we young onsets from what i've read around here, still have shown to have intact higher cortical functioning, even if our bodies are going through hell, and each day presents itself with a whole new set of struggling with life.
Some of us from the "early days" must be getting "pretty bad" by now. All i want is to remain independant, but i see everything just gets worse, so i'm in no mood to be sceptical. I have managed to stay out of a wheelchair at the expense of falling a lot, so ANYTHING that helps would be gladly accepted at this stage (no DBS need apply, thank you).
It's coming, cure within one more notch on my PDBS meter. I don't know about you, but i plan on walking away from this terror one fine day. cs
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Old 10-26-2010, 06:49 AM #3
soccertese soccertese is offline
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Quote:
Originally Posted by ol'cs View Post
I've been yabberin' about for over a decade on this site. Soccertese, you have travelled this road as long as i have an we've seen the false starts, the "too good to be true's", and suffered to the point of little hope, but hope this is, so, i'm not sceptical. If these people have said that they have done it, then for once in my life i BELIEVE in a final solution to fore and mid-brain neurodgenerative diseases through "some kind" of an "implant of the correct cells to the correct areas". IMHO, it's the "only" way.
So lets raise a cheer that maybe , just maybe, we are finally on the right path, for some abatement of the worst PD symptoms. Sure our lives are made difficult by PD, but we young onsets from what i've read around here, still have shown to have intact higher cortical functioning, even if our bodies are going through hell, and each day presents itself with a whole new set of struggling with life.
Some of us from the "early days" must be getting "pretty bad" by now. All i want is to remain independant, but i see everything just gets worse, so i'm in no mood to be sceptical. I have managed to stay out of a wheelchair at the expense of falling a lot, so ANYTHING that helps would be gladly accepted at this stage (no DBS need apply, thank you).
It's coming, cure within one more notch on my PDBS meter. I don't know about you, but i plan on walking away from this terror one fine day. cs
then i hope your're considering volunteering for a clinical trial for one of the phase3 gene therapies. ceregene might be recruiting and neurologix hasn't yet announced if they will do a phase3.

the early foetal cell implants had amazing long lasting benefits but a few very bad results. levesque did one successful autologous implant but i believe the pd returned. so if the political will/desire was there we could be much closer to the "cure" just using those 2 existing techniques, pd imho is much simpler than cancer or aids. it amazes me the public doesn't demand cures for cancer, diabetes, alzheimers - that alone would balance the health care budget ))

i'm also hopeful for something better than a DBS but i also keep my affairs in order and prepare for the worst.
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Old 10-26-2010, 08:55 PM #4
lurkingforacure lurkingforacure is offline
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Default on the fence myself

I would love to think this was IT as well but I have to say....does anyone remember Andrew Kissana, or however you spell that last name? He had adult stem cell treatment at Bangalore, this same town, several years ago, maybe two, and was in the papers, I think there were several posts here on the forum about it. Then, like Dennis Turner, he dropped out of sight. I think this same doctor was the doc who performed the transplants on him, actually, although I could be wrong.

I would think that if this were a cure, we would have read all about it working for Mr. Kissana by now. But I can't find diddly, despite looking. This makes me skeptical. If anyone knows anything about him, speak up!

On the other hand...I am hopeful because I one of those who believe that if stem cell transplants are going to work, they will be autologous. This avoids a lot of the problems with fetal stem cells (see my prior post about that if you're bored!) as well as the big one: tumors.

So I'm on the fence on this one, although I'm very open to being persuaded to the hope side, just need a bit more proof, as in actual PWP being helped.
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Old 10-27-2010, 07:28 PM #5
zimmer127 zimmer127 is offline
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I just met someone with PD who had stem cell treatment a few months ago in Germany. I definitely plan to follow up to see what happens. So far, nothing, except he felt worse in the beginning. The stem cells came from the bone marrow but were injected into the spine, I believe.
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