Greetings folks - enjoy your posts.

DX - 3 yrs a go
Diet - good
Exercise - daily/fair
Supplements - multitudes!
Natural remedies - tried a bunch!
Sleep - @ 4 hrs
Stress - big problem

My thorn in the flesh is my arms - lots of pain and stiffness and maybe inflammation (my current naturalists doctor thinks inflammation is an issue) from elbow down - seems like the PD has centered around my forearms! If I had relief in the forearms/wrists then people wouldn't know I had PD and my attitiude and outlook would be vastly different. No neuro or natural doctor has answers for my arms - My only relief, unfortunately, is the sinemet and I'm thankful for that for without it this PD would be unbearable everyday.

But any thoughts on why my arms are taking the blunt of this?
Thanks
God bless

hi,

i am not a doctor, repeat....etc/etc

we are learning that pd is not just about dopamine. Have you asked about an anticholinergic to balance some of the other actions that are overfiring or lacking along with the lack of sufficient dopamine? some of the transmitters for the peripheral system could also be out of balance.

Are you & Drs sure you don't have some sort of repetitive motion injury issues happening also?

1) How do the meds affect your arms in terms of the muscles clenching? That can really make them sore.

2) The inflammtion possibility is real. I take silymarin and saw palmetto daily for that.

Thanks Rev - I started out with 1 25/100's 3 times a day - now I'm up to 25/250 2 times a day and sometimes on a bad day I take one before bedtime.

1. No clenching that I'm aware of. The sinemet helps. I also believe that my lack of handling my stress is a factor and after reading your posts it appears to be true of me. A lot of changes in my life the past 3 years.

2. As mentioned my wellness DR thought the inflammation could be there and she put me on some pharma grade CO10 1,000 mg a day along with Neuroflam 2 weeks ago - I have since stared taking tumeric - heard that could help and tart cherry juice concentrate and apple vinegar cider. Been trying to avoid foods that may aid in inflammation and taking more foods/supplements that could aid in suppressing inflammation.

While I am here - I last upped my dosage from 25/100's to 25/250's back in Nov. and it helped - also was real low in vit D and have upped that and both appeared to really make a difference but now I am afraid the sinemet may not be doing the job like it used to or there is something else going on - MY FEAR? How much sinemet can one take till there comes a time where I'm maxed out, if that is possible? - I fear there will be a day when my dosage will be real high and nowhere else to go!

Any thoughts on the potential high dosages?
BTW - no tremors at all - just stiffness and pain. Balance is ok - brain fog better than it used to be once I got off of sleeping pills

Thanks,
God bless

You might like to visit our Thoracic outlet syndrome forum (TOS for short) RSI is included (there is a subforum for RSI also, but more posts on the TOS forum}.
here is the TOS forum useful sticky thread -
http://neurotalk.psychcentral.com/thread84.html
post #1 is a crash course of info - so you can assess if any of it might apply for you.

Also we have a Vitamins, Nutrients, Herbs and Supplements forum
http://neurotalk.psychcentral.com/forum49.html

thanks for idea - I have not have this brought to my attention - used to do a lot of typing but not much now due to pain and stiffness.

Thanks - will ask about this on next visit. Read a lot in 3 years but not all - still searching for what might work for me. My wellsness doctor believes something else is going on besides the PD for I should not be experiencing this much discomfort in my arms.

I too have pain in my upper right arm.it gets worse as the day goes on. I do quite a bit of typing as part of my job and also doing assignments from uni. I think there is a link with PD made worse by my lifestyle. Luckily meds help
Caroline

I am by no means a doctor.

I have been diagnosed with PD for 12 years now. I noticed in the previous posts a common thread. You all seem to be taking Sinemet 25/100 and a Sinemet 25/250 name brand or generic carbodopa/levadopa. Are any of you taking SinemetCR as well or it's generic carbodopa/levodopaER?

The reason I ask is that when taking the regular Sinemet, it peaks quickly like 2 hours then drops off to to nothing before the next dose. By adding SinemetCR it keeps levodapa in your system between doses. To me it sounds like you are going off between doses. The SinemetCR acts like a cushion between doses. This is where the soreness and muscle cramping may be coming from. Another question is have you tried taking some Aleve or something similar? Aleve is an anti inflammatory.