Parkinson's Disease Tulip


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Old 04-12-2011, 04:36 PM #11
nickvalo nickvalo is offline
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Default No, I'm not a spammer nor a sales person

Quote:
Originally Posted by soccertese View Post
ahhhhhhhhhhhhh
the plot thickens.
Soccertese ... if you are implying that I'm trying to sell some products or services, you are wrong. I can sort of see why you think that based on my last post, but I assure you that is not my intention ... i'm just trying to share some interesting reads on the topic.

As a new member, it doesn't allow me to include the URLs, but if anyone is interested in the reads, let me know and I'll try to get them to you some other way.
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Old 04-12-2011, 04:36 PM #12
paula_w paula_w is offline
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Default well soccertese....

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Originally Posted by soccertese View Post
ahhhhhhhhhhhhh
the plot thickens.

We could each try one and you can join us.

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"Time is not neutral for those who have pd or for those who will get it."
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Old 04-12-2011, 06:27 PM #13
soccertese soccertese is offline
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Quote:
Originally Posted by nickvalo View Post
Soccertese ... if you are implying that I'm trying to sell some products or services, you are wrong. I can sort of see why you think that based on my last post, but I assure you that is not my intention ... i'm just trying to share some interesting reads on the topic.

As a new member, it doesn't allow me to include the URLs, but if anyone is interested in the reads, let me know and I'll try to get them to you some other way.
let me see, you come on the board and immediately try to convince people to get expensive lab tests. no proof they will help. you mention a specific lab. yes, i think your're trying to sell something. see it all the time. you say you are an engineering/problem solving type and haven't stumbled across any web sites pushing amino acid balancing and had to come to this board to find info? you could search the posting history to find if there has been any anecdotal experiences.

just always suspicious of newbies that don't have pd and push alternate treatments that seem very well informed, i'm done.
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Old 04-12-2011, 06:54 PM #14
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Soccertese and I seldom agree on things, but I gotta go with him on this one.

Quote:
Originally Posted by soccertese View Post
let me see, you come on the board and immediately try to convince people to get expensive lab tests. no proof they will help. you mention a specific lab. yes, i think your're trying to sell something. see it all the time. you say you are an engineering/problem solving type and haven't stumbled across any web sites pushing amino acid balancing and had to come to this board to find info? you could search the posting history to find if there has been any anecdotal experiences.

just always suspicious of newbies that don't have pd and push alternate treatments that seem very well informed, i'm done.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 04-12-2011, 11:42 PM #15
nickvalo nickvalo is offline
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Confused

wow, i'm embarrassed that my first post resulted in your conclusions. I am here to learn and contribute. My Mom really does have Parkinson's. She recently fell twice in 2 weeks, which woke me up about her condition and I've been getting directly involved with her treatment. Do I need to send you her 23andme saliva so you believe me? Well, I'm joking about that, but I hope you remain open minded about my intentions because I'd really like to be part of this community.
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Old 04-13-2011, 01:43 AM #16
girija girija is offline
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Hi,
Whether Nickvalo is here for his mothers sake or to sell something, none of us know. At least for the time being trust him and let him post his thoughts. His questions are valid and we do need to think about them;

Welcome Nickvalo and lets get a good scientific discussion started!

Girija
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Muireann (04-13-2011)
Old 04-13-2011, 02:00 AM #17
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Quote:
Originally Posted by nickvalo View Post
wow, i'm embarrassed that my first post resulted in your conclusions. I am here to learn and contribute. My Mom really does have Parkinson's. She recently fell twice in 2 weeks, which woke me up about her condition and I've been getting directly involved with her treatment. Do I need to send you her 23andme saliva so you believe me? Well, I'm joking about that, but I hope you remain open minded about my intentions because I'd really like to be part of this community.
23ANDME diagnoses pd?
i don't find that the least humorous. your mother needs help and you want basically to tell us you are going to try an approach that might have a slight chance of helping? that is your approach to getting her help? what are you doing for your mother right now, you obviously aren't happy with her current treatment? you say you are here to learn yet don't go into detail about your mother condition, ask for any specific advise on your mother's condition, treatment or neuro. i find that very strange.
as far as i can see your intentions are to try to influence members of this board.
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Old 04-13-2011, 02:14 AM #18
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Originally Posted by girija View Post
Hi,
Whether Nickvalo is here for his mothers sake or to sell something, none of us know. At least for the time being trust him and let him post his thoughts. His questions are valid and we do need to think about them;

Welcome Nickvalo and lets get a good scientific discussion started!

Girija
you don't come to this board to have a "scientific" discussion. there are no scientists here. scientists are too busy doing science and realize a serious responsibility/liability occurs when you discuss health issues. there are discussions, no doubt about that.
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Old 04-13-2011, 02:58 AM #19
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[QUOTE=soccertese;761850]you don't come to this board to have a "scientific" discussion. there are no scientists here. scientists are too busy doing science and realize a serious responsibility/liability occurs when you discuss health issues. there are discussions, no doubt about

Soccertese,

I am a scientist, still in research, manage an academic research lab and I am here/ You may not be aware of it, but we had many scientific discussions here in the past (inflammation, BBB, vit d, diabetes and PD are a few examples) long before the PD research community even thought about their connection with PD. I was attracted to this forum mainly because of scientific discussions among the participants and learned a lot about PD from this forum. There are true scientists here, they may not have MD/Ph.D tags next to their names......thats the only difference I see/

Girija
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Old 04-13-2011, 03:20 AM #20
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[QUOTE=girija;761853]
Quote:
Originally Posted by soccertese View Post
you don't come to this board to have a "scientific" discussion. there are no scientists here. scientists are too busy doing science and realize a serious responsibility/liability occurs when you discuss health issues. there are discussions, no doubt about

Soccertese,

I am a scientist, still in research, manage an academic research lab and I am here/ You may not be aware of it, but we had many scientific discussions here in the past (inflammation, BBB, vit d, diabetes and PD are a few examples) long before the PD research community even thought about their connection with PD. I was attracted to this forum mainly because of scientific discussions among the participants and learned a lot about PD from this forum. There are true scientists here, they may not have MD/Ph.D tags next to their names......thats the only difference I see/

Girija
my apologies. i've got a masters in agronomy with numerous classes in biochemistry and genetics but that doesn't qualify me to have an intelligent discussion about human physiology/biochemistry that would be anything but superficial. i've seen other boards with serious discussions on those topics, imho this isn't one of them. just my opinion. i have no idea what you mean by true scientists. if you want to back that up, post a link to a "scientific" discussion here and lets objectively critique it. i'd say the "science" here is mostly cut/paste from the internet and doing the same to back up preconceived notions.
don't get me wrong, i deeply value this board and anyone's right to post here. i will express my opinions until kicked off.
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