Parkinson's Disease Tulip


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Old 05-09-2011, 04:52 AM #1
Jim091866 Jim091866 is offline
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Default Eight days now, no end in sight.

Eight days now that I have gotten up late, yesterday it was 2 pm when I first opened my eyes. I am divorced but still live with my wife. Can't seem to make up my mind I guess. 8 days since I've felt okay with my life, far more than that since I've seen a smile, felt a hug, I don't know what else, far more than 8 since we've been intimate, way too far to remember. She says I'm not there for her emotionally-she wants help working out to lose weight. Her at 295+ and me with PD that's kinda hard to do. I'm not there sexually- I admit I need some help from a little pill but that is out of the question for her. On and on we have gone for some 25 years. Eventually, you figure out that the cat isn't going to give you puppies ya know! I just don't know what to do. We are at a cross roads again and it is going to cost us BIG TIME. My oldest daughter just started college this spring, we have been making her car payment. The youngest is looking at getting started. Last time this happened we were so angry with each other that we got separate apartments, nearly lost our house to foreclosure. We got back together and saved the house and now everyone has a safe roof over but at what cost. I told my "wife" that when we were going through this the last time that I had gone out to the garage and tied an extension cord around an overhead truss, made a noose and all that was left to do was kick the bucket out from under my feet but I couldn't. Her reply was that it wasn't her fault. That was as a result of a quarrel I had with my youngest daughter amongst other things. I simply would like her to acknowledge the fact that "I'm sorry you ever felt that way." She never has even if she did not intend to hurt me just to state that is not admiting a crime. She wont ever do it-one thing I have NEVER heard from her-"Hey Jim,let's hug and put this behind us." NEVER. It would be a conviction of wrong doing for her. An admission of guilt. I have always come back over to her side, at times when there have been some things I have wanted from her-yet we have made up and then when it is 2-3 months down the road we're arguing over the same thing it will hit me-stupid, you agreed to make up and she never agreed to anything! I know that the bottom line is that at this point we are deep into a codependant relationship. I don't know what to do. The State took my drivers license, says my medical condition is too bad to drive. We gave up our truck when Paige started college to afford her car payment. I wake up when I do, sit on the couch, watch tv, go outside with the dogs, go to bed about 8-9 after taking clonapin so I will sleep. Don't have places to go, people to see. I guess it's 8 days now.

Last edited by Jim091866; 05-09-2011 at 05:38 AM. Reason: speeling
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Old 05-09-2011, 10:35 AM #2
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Default PD messes up lives

Jim, I don't have any advice for untangling the mess you're in, but it sounds like the lot of you are going to have look outward for ideas. Here's a blog on the APDA's young onset site that has a lot of stuff on family communication:

http://www.youngparkinsons.org/blog

Hope this helps.

Best wishes,
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Old 05-09-2011, 12:07 PM #3
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Default

From the practical/financial side of things , if you "do yourself",, I don't think anyone gets life insurance monies.
Not to mention the fact that your kids will feel that somehow they were partially at fault. That will last a lifetime for them..
Please see our Survivors of Suicide forum if you start to think that way again- or read there before you feel that way.
http://neurotalk.psychcentral.com/forum29.html

It's hard to say anything about the marriage situation.
I have brothers that are healthy and they can't even seem to find a lifelong mate.
I guess try to maintain a good environment for the daughters and make sure they know they are not the cause of any tensions in the home...
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Old 05-09-2011, 01:34 PM #4
Jim091866 Jim091866 is offline
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Default Dont misunderstand me..

I'm NOT suicidal now. I was then and that was her remark when I shared that with her. Hmmm not much there huh?
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Old 05-09-2011, 03:27 PM #5
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ok...so...if u are divorced why are you living with her?
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Old 05-09-2011, 03:29 PM #6
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Default put your health above all else

Jim,

I was where you are a year and a half ago. My ex is an engineer. Any chance your wife is an engineer?!

We were married 26 years when my husband asked for a divorce. If he hadn't done it, I would still be in that abusive relationship.

In those 26 years I NEVER heard the word "sorry". Everything was MY fault and if I'd just straighten out, everything would be okay. Yeah. Right. The day that I was diagnosed with Parkinson's my husband had the audacity to say, "Well you finally got the diagnosis that you wanted".

I was forced to live with my brother and his family for a year and am now in an Assisted Living facility. It was the best thing that could have happened to me.

Let me tell you my philosophy. I use to say I had four things that kept me going ... my family, my health, my faith and my sense of humor. Since that time I have reassessed the situation and learned that I can get by on two things .. my faith and my sense of humor. My family is on the bubble with two of my four kids angry at me for the divorce ... and my health, well, that is precarious as well. BUT no one ... not my best friend or my worst enemy can touch my sense of humor or my faith. The way I figure it is that I can always mend family relations .... but I can't get back my health if I don't take care of it now.

I don't let ANYTHING come between me and my Parkinson's.

What I'm trying to say is this ... you can't get back your health and stress only exasperates the situation. If you're in an abusive and/or loveless relationship, you need to get out. Even if you have to temporarily move in with someone. In essence your life depends on it.

Also be sure to seek a doctor for anti depressants. It took my at least three months to admit that I was depressed, and when I finally admitted it to my general practitioner, he was surprised but supportive. PD, alone, can cause depression and your home life makes in unbearable.

Oh, and I'm not sure what insurance you have, but after the divorce I was put on COBRA for three years.

If you need someone to talk to, feel free to IM me. That's what we're here for. Know that you're not alone.
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Old 05-09-2011, 06:45 PM #7
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Default I don't know why...

yes I still live with her and we are divorced. I own the house. I know its not a good relationship. yes, I know I am depressed, in fact 2 wks ago my doc increased my antidepressant, it's been WORSE since then. Lately I'm not saying anything, just keeping to myself and going about the day. I do go to bed awful early. I just don't know what's gonna happen. When I told her last night (this is my weakness coming through) just tell me what I have to do, tell me. All she said is I don't think we need to be together.
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Old 05-13-2011, 04:38 PM #8
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Default What do you do?

When I started this thread I said it was eight days and counting. It's been more than that. That's just the days I started counting. My wife now tells me she is emotionally empty, has no feelings for me. "She could go on till we die living together and never again be close." She is tired of her weight, the way she looks, etc. Sex is too much effort, exhausting for her, etc.
Meanwhile, I am going to psychotherapy, on antidepressant meds, I love her but I know that you can only change yourself. I so desperately want to have a vibrant, healthy relationship with this woman. I equate to the wiring harness in a car. It is a part of it, the car cannot function properly without it. She thinks that because I want to be sexual and she does not that now I need to seek counseling for this as well-I must admit that I have a history of seeking out internet porn but I did not join sites, I would just sit for endless hours looking at the "teaser" pages. I have never had cybersex or gone further than these introductory pages, I cannot remember how long it has been since I've done that though. Prob. 2-3 months. I am really hurting in that I know that I cannot change HER, I can only change me. This is getting to be truly depressing because I feel that this is hopeless and when someone loses hope when that is all we have- Faith, Hope and Love. I'm trying to hold onto Faith.
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Old 05-13-2011, 10:43 PM #9
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All I have to offer is, if you are not getting your needs met, then I would find someone who can fulfill them

Dont ever tell yourself, that you cant find someone else to love you, because you have pd

Trying to get what you want/need out of somebody who doesnt have it to give, is like trying to put a square peg into a round hole, everyday of your life

Living with a cronic broken heart, certainly does not compliment your symptoms
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Old 05-14-2011, 06:28 AM #10
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Default A thread full of great advice---

must be very comforting. These wonderful people are giving you some great tips and information. If that support isn't Love, what is? They care. They are the rescue team. This is a miracle happening right here, IMHO. The counseling and the antidepressants are in the same class of wonders--you seem to be working on some important stuff.

There's a lot in your life to rejoice about, as I see it, but this isn't the place for a sermon from me, LOL. The thread speaks for itself.
'
Jaye

Last edited by Jaye; 05-14-2011 at 06:38 AM. Reason: typo
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