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#1 | |||
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Hello everyone, sorry if I write with some mistakes in grammar, but I am Italian. I will use the Google translator. I want to thank everyone for this very interesting forum, which I follow for a long time even though I've never written anything. I am 42 years old and I have PD since 2007 (first symptoms 2004/2005). Currently I take Madopar 200mg +25 mg (1 / 2 cps x 2) and Neupro 4 mg, and various supplements.
Today I decided to write because, very recently I was able to make an ECD (Echocolordoppler), performed by medical specialists according to the method of prof. Zamboni, to see if I had CCSVI. The examination was done according to the latest information provided by prof. Zamboni ISNVD Consensus Conference in 2011 (look on youtube). The result was: positive 4 / 5 criteria. Also completely blocked the right jugular vein, this means that the blood that should return from the brain to the heart, at that point does not pass, and this may result in accumulation of harmful substances in the brain (iron, copper, etc..). The doctors have told me that now they are seeing more and more cases of people with Parkinson's and other neurodegenerative diseases with CCSVI (not only MS as they thought up to now). Looking on the web and reading the experiences of people with MS with CCSVI, who then made the "liberation" (angioplasty of stenotic veins, but be careful without stent), I saw some real benefits, some almost immediate (see youtube: CCSVI Liberation , etc.). Maybe it could be a treatment help, or maybe even more. We are just beginning. Sorry for the length of my speech, but perhaps it is a subject too important to be able to close in two lines. Bye. Ciao, a presto. |
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"Thanks for this!" says: | paula_w (08-06-2011) |
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#2 | |||
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Hi everyone,
a few days ago, I performed the liberation treatment for CCSVI, also known as PTA (percutaneous transluminal angioplasty) to the neck jugular veins. All ok for now. Bye. |
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"Thanks for this!" says: | paula_w (08-06-2011) |
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#3 | |||
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Quote:
md
__________________
Smooth seas do not make skillful sailors.... Nature loves courage. “The day science begins to study non-physical phenomena, it will make more progress in one decade than in all the previous centuries of its existence.” ~ Nikola Tesla |
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#4 | |||
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Thanks for your interest. Up to now I feel good, the little pain after surgery are rapidly disappearing. I still have to follow a medical treatment with heparin (typical for angioplasty to prevent possible thrombosis), then for another 6 months I need to take cardioaspirin for the same reason.
The stenosis of the jugular veins of the neck, are now reopened, and the azygos vein was already open. As for any improvements, at the time, I do not have to report changes from before surgery. Maybe something has improved with regard to the fatigue of the right hand to write for a long time at the PC keyboard. I was performed the PTA surgery, not so much because I was hoping to heal (obviously), but at best to try to slow PD (or stop, maybe). We'll see if it will. The procedure takes about 1 hour and is performed in day surgery, but it is not just like a "walk in the park." According to dr. Zamboni's theory, CCSVI is definitely correlated with MS, but recently it is assumed also for other neurodegenerative diseases like ALS and PD, etc. Most neurologists are obviously not agree, usually they prescribe drugs and drugs and drugs and ... only drugs. Until the end. But if there was also a chance to do something, I would. Perhaps not help much for PD, but what's the alternative? Sorry for my English. Bye. |
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