FAQ/Help |
Calendar |
Search |
Today's Posts |
07-26-2011, 08:16 PM | #11 | ||
|
|||
Member
|
JUST WAW. That is the very best that I have ever read, not about how to live with PD but just how to live. Thank you Bob.
Imad Quote:
__________________
Imad Born in 1943. Diagnosed with PD in 2006. |
||
Reply With Quote |
07-27-2011, 01:25 PM | #12 | |||
|
||||
Member
|
Yes, forced exercize works...I'm living proof. I about beat myself to death in the garden most days and yet I live....I grow stronger month by month as far as stamina, balance, PD symptoms are hardly there. Sunshine seems to help so much too....on days when I can't get out because of thunder storms & lightning lately....I don't feel near as well. Used to get up in the morning hardly able to move and in quite a bit of pain...now pain level is low and several minutes of stretching and I can move freely again (of course I am still taking the fava tincture and the dried fermented papaya too...I don't think I'd be gardening without them.................God is good. So thankful for my little mattock (my right arm) We are constant companions in this fight to beat PD...it's also my weed wacker, raised bed maker, potato digger, ditch maker. Everybody should own one!
Exercize past your limit and your limit will exceed previous expectations!!! God Bless |
|||
Reply With Quote |
"Thanks for this!" says: | Bergamotte (06-06-2016), imark3000 (07-27-2011) |
10-31-2011, 05:55 AM | #13 | ||
|
|||
Senior Member
|
First to remind people I've been investigating forced exercise (FE) in the sense of machine initiated movements of the arms at rates (currently about 120 rpm) that I would be unable to maintain myself. This requires little exertion.
I think an update is worthwhile. In order to see whether the gains persisted, I took a break from forced exercise (FE). When I restarted I scored higher than the average in the first two weeks of the original trial, but about 5% lower than in the final two weeks. As far as one can make any conclusions from a sample of size 1, i.e. me only, this is consistent with some medium term benefit. I've now added a second machine of similar design, so I can exercise both arms concurrently. They are set to different frequencies, so as to keep the movements independent, a.o.t on a bicycle where the pedals move at the same rate for both legs. It's early days, but I'm already averaging 10% higher scores than in the original trial. But, it does for me, at least, seem to come at the cost of a worse tremor. My next step will be to add more concurrency: perhaps bicycle like FE, perhaps a vibration plate, perhaps a TENS machine. As a way of thinking about what is going on, the following example resonates with me: take a battery powered drill, switch it on, the spindle will turn and the battery will drain; alternatively run the system in reverse, turning the spindle will recharge the battery. Is there a biological equivalent with FE and dopamine? I'm encouraged that (my thanks to Conductor71 and aquario in a different thread for pointing to the NY Times article) "Dr. Alberts suspects that in Parkinson’s patients, the answer may be simple mathematics. More pedal strokes per minute cause more muscle contractions than fewer pedal strokes, which, in consequence, generate more nervous-system messages to the brain. There, he thinks, biochemical reactions occur in response to the messages, and the more messages, the greater the response." John
__________________
Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
||
Reply With Quote |
10-31-2011, 08:05 PM | #14 | ||
|
|||
Member
|
I cycle on a stationary byke to maintain strength of my legs. I do push-ups to keep my arms strong.
I received no guidance or encouragement to exercise from the numerous neuros I have seen. But I was encouraged to exercise by a relative who had PD 7 years before me. I started exercising from day one and I increased the rate over 5 years and up to now. I cannot say objectively that exercise had any impact on the progress of the disease but to me, exercise has it's immediate rewards by giving a feeling of liveliness and joy. Imad
__________________
Imad Born in 1943. Diagnosed with PD in 2006. |
||
Reply With Quote |
"Thanks for this!" says: | Bergamotte (06-06-2016) |
10-31-2011, 08:27 PM | #15 | ||
|
|||
In Remembrance
|
Quote:
even tho you may not see the direct relation from exercise to symptoms, it will be what saves you if you should have a fall or other accident or condition that requires much from your body. It'a the only thing that can strenthen you at the same time PD weakens you.
__________________
paula "Time is not neutral for those who have pd or for those who will get it." |
||
Reply With Quote |
"Thanks for this!" says: | Bergamotte (06-06-2016), imark3000 (10-31-2011) |
11-01-2011, 06:19 AM | #16 | ||
|
|||
Senior Member
|
As I'm using the term, I don't see forced exercise being used instead of "normal" exercise, but as an addition to it. Exercise, especially where varied, seems very sensible to me.
It may turn out that FE is most appropriate in situations where the limiting factor is dopamine (rather than normal body fitness). For instance, finger taps rather than running. The key questions are: - does FE lead to more dopamine in the brain? - does FE of a finger, say, have a localized effect, to those areas dealing with finger movement? - is there enough neuroplasticity to change the dopamine economy? John
__________________
Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
||
Reply With Quote |
07-01-2013, 05:56 PM | #17 | ||
|
|||
Senior Member
|
In a recently published paper Outubuddin et al. report [1]:
"Objective. The concept of forced exercise has drawn attention for the treatment of Parkinson’s disease symptoms with anecdotal reports of success. This study sought to ascertain any significant effect of forced exercise using a motorized stationary bicycle when compared to controls on Parkinson’s disease symptoms in a blinded, randomized, and controlled setting. Setting. Parkinson’s disease outpatient clinic, Veterans Administration Medical Center. Method. We assessed 23 patients (13 experimental and 10 controls) ... after participation in eight weeks of twice weekly forced exercise or eight weeks of conventional clinic care, and then after a three-month period had elapsed. ... Results did not demonstrate any main effect differences between the exercise and control groups on any measure at any point in time. A within subjects effect was demonstrated for the forced exercise group on overall UPDRS-III scores at the three-month end point. No other within group effects were noted. Results suggest that early enthusiasm for forced exercise may need tempering. Limitations of the study are discussed as well as numerous logistical challenges to this type of study." Reading the whole paper gives IMHO a more positive take: some key measures improved, but not by enough to show statistical significance given the small sample size. The paper describes forced exercise of the legs. I notice that, although they did not use it, their machine could force exercise the arms. Reference [1] "Parkinson’s Disease and Forced Exercise: A Preliminary Study" Abu Outubuddin,1,2,3 Timothy Reis,1,2 Raed Alramadhani,1 David X. Cifu,1,2 Alan Towne,1,3 and William Carne1,2 Rehabilitation Research and Practice Volume 2013 (2013), Article ID 375267, 5 pages http://www.hindawi.com/journals/rerp/2013/375267/ John
__________________
Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
||
Reply With Quote |
07-01-2013, 07:21 PM | #18 | ||
|
|||
Member
|
I just read the article referenced above and am curious about a number of things:
1. if the authors were attempting to replicate the FE studies done by Dr. Alberts, why did they not have the patients ride three hours a week at the protocol of 10 minutes warm-up, 40 minutes at cadence and 10 minutes cool down? 2. why did they use a Theracycle when it does not replicate the algorithm that is necessary for mitigation of the disease? |
||
Reply With Quote |
07-02-2013, 10:00 AM | #19 | ||
|
|||
Magnate
|
they seem to be making a large effort tauting their product for pd.
it is odd they reported a delayed benefit when comparing a patient to themselves before and after the exercise. other studies with treadmills, weight training, tai chi, dancing, have shown a statistical benefit. so i'm not going to buy a theracycle! |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Forced Vital Capacity | Myasthenia Gravis | |||
MDS 2009: Forced Exercise Provides Benefit Similar to Levodopa in PD | Parkinson's Disease | |||
Exercise, passive exercise and blood flow enhancement improve symptoms in Parkinson's | Parkinson's Disease |