[paula_w]

i have terrible balance problems and speech dysfuntion, the latter coming from meds. how my body behaves is completely determined by the med cycle. it's not "is it time for meds by looking at the clock?" it's time for meds when your body tells you it is.

DBS might relieve my side effects but balance, speech are not repairable by DBS. i don't have a tremor, i agree with peggy, the doctors have to apply themselves by learning about med combinations. not stalevo kind - i don't mean one pill two meds. ...

i mean how does mary react to paxil, amanatadine and sinemet cr , etc. i ask if i can take this, this and this and how much, then i go out and try it, dbs is not the only choice we have - it's the only choice they have.

our answer to why we don't have dbs is because it is definitely too risky for those off balance. it's not safe, we want placebo free gdnf trials - what's the hold up? it's been 2 years since they announced its' comeback.