Maybe I'm wrong, but I am a bit shocked that the Fox Foundation, as of last night, still has NO mention of Dr. Jannetta's amazing discovery of the connection between vascular compression and PD. Jannetta is applying for funding for clinical trials and he is world-reknowned for his work, yet not one word on the Fox site about either the woman whose PD miraculously disappeared after vascular decompression surgery for TN or the pilot study where 78% of the PWP were found to have compression of one or both penduncles. Jannetta's work is definitely "out of the box" thinking which I thought FF went after. Yet no mention of it on the site anywhere that I can find.

When the "high levels or uric acid" were "linked to PD", this was given notable discussion on the site and that was only something like 20%. Same with pesticides, farming, manganese, etc. At least one of the other major PD foundations has/had it on their front page, I think it was the Northwest Parkinson's Association, not sure.

Given the potential, and the fact that you could see rather immediately whether Jannetta's procedure worked on a large scale, I don't understand why it's not even mentioned. Funding from Fox for Jannetta could ensure that a trial started quickly, and from what I understand, Jannetta's office has been literally inundated with calls from people everywhere, so there'd be no shortage of PWP who would be willing to participate, right now.

Anyone know anything?

I heard once that Somerset Pharmaceuticals was linked to FF - just a rumor...no real sources, but, I too am a little miffed why they don't allocate more research $$ to non-traditional treatments....and btw...I just received my orthotic appliance and my dentist even came to my upper cervical chiropracters' office to do a series of interactive adjustments. I can report that this appliance helps me breathe better and when i wake up in the morning i'm more relaxed with it in. so thats a start. also altho subtle it corrects my posture as well.

maybe the things worth having in this world we have to innovate and act upon ourselves to achieve - drugs and surgery may be only part of the answer.

and about that uric acid in pd....ok this is embarrassing but ....when my shoulder froze i had to use a urinal because of immobility and urgency and discovered that my petunias, iris, geraniums, columbine etc absolutelyl LOVED ....it. BETTER than miracle grow!!!!! ha ha

kind regards to you lurkingforcure-keep moving
md

I remember an interview with MF where he conveyed the message that his foundation is looking for answers to PD that can be turned for profit so that the work will carry on beyond his organization...sort of like turning the car keys over. I don't claim that creating value and then perpetuatingit is contrary to principals in healing, however, it seems that our dilemma is a sort of reflection of the world at large these days taking economic practices to their limits. The bigger the monopoly on some "cure" the less available it will be to the common person.

Occupy our feet
md