[CarolynS]

...but not the first time. As with many on this board Peggy has been a long time friend of mine too.

What’s it like to be in a clinical trial?

The Center for Information and Study on Clinical Research Participation

have produced a number of films showing persons who participated in clinical trials. One of them is PARKINSON’S MOVEMENT ambassador Peggy Willocks and her film together with an introduction can be seen here:

Patient Testimonial by Peggy Willocks, Parkinson’s Disease Foundation Clinical Research Advocate and Volunteer

Provided by The Center for Information and Study on Clinical Research Participation

So, get out you and soda , sit back and watch a pro at work.

[pegleg]

How about a vivid example of dyskinesia a nd a screwed up nervous system? lol
Thx digger

[indigogo]

Great job, Peggy!

Question for you: How did Emory get your name in the first place? Had you indicated an interest to your doctor in clinical trials? Had you been diagnosed or treated at Emory?

Just wondering because it's a hard thing to do to find people to participate - but somebody called you and asked, and that can be very effective. But we have to know who to call!

Love you!

[pegleg]

Good questions! And you are so right; we need more participants. How is Fox Finder going? If people would just realize that they may be among the first to experience the success of a new treatment. That almost overshadows the bad stats.

you asked:
How did Emory get your name in the first place? I saw an MDS there.

Had you indicated an interest to your doctor in clinical trials? yes
In fact the DBS had just been approved for globus pallidus (?sp) placement, andI was on the waiting list for STN placement (subthalmic Nucleus) There was a waiting list for the DBS a mile long! If people see and hear "it works," everybody wants to sign up. Then I got the call about the Spheramine (retinal cell) transplant.

Had you been diagnosed or treated at Emory? Yes I went each year and saw (still see) a local neurologist for meds, Rx refills, etc. In fact my local neurologist is who referred me to Emory originally. He's a saint. There are a few good ones around.