Parkinson's Disease Tulip


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Old 10-30-2011, 10:59 AM #1
Ling2 Ling2 is offline
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Ling2 Ling2 is offline
Junior Member "Ling"
 
Join Date: Sep 2006
Posts: 62
15 yr Member
Default Hi ...

Dx 10 years ago.
Two months ago...I maxed my sinemet cr to almost 1300mg levadopa plus contam plus 8 mg requip resulting in severe leva-dopa induced off dystonia almost another day ...in fact, no one, even my MDS, told me that the dystonia was leva-induced....until I rigorously reduced my sinemetcr to 400-500mg that all my dystonia gone! The reduction was done overnight, not progressive adaptation.
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VICTORIALOU (11-01-2011)

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Old 10-30-2011, 05:35 PM #2
imark3000 imark3000 is offline
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imark3000 imark3000 is offline
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Quote:
Originally Posted by Ling2 View Post
Dx 10 years ago.
Two months ago...I maxed my sinemet cr to almost 1300mg levadopa plus contam plus 8 mg requip resulting in severe leva-dopa induced off dystonia almost another day ...in fact, no one, even my MDS, told me that the dystonia was leva-induced....until I rigorously reduced my sinemetcr to 400-500mg that all my dystonia gone! The reduction was done overnight, not progressive adaptation.
If they (the doctors) know the possible side effects of l-dopa and don't tell us, that is bad. But if they don't know after 50 years of using this 'golden' drug, this is a disaster.
How are you doing now?
all the best
Imad
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Imad
Born in 1943. Diagnosed with PD in 2006.
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Old 11-23-2011, 02:48 PM #3
Ling2 Ling2 is offline
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Originally Posted by imark3000 View Post
If they (the doctors) know the possible side effects of l-dopa and don't tell us, that is bad. But if they don't know after 50 years of using this 'golden' drug, this is a disaster.
How are you doing now?
all the best
Imad
Sorry for my late reply and I'm doing fine with low dosages of I-dopa. And I must recommend the music therapy of www.duosuccess.com.
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