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Cogane phase II trials

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Old 06-20-2012, 10:45 PM #31
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I have noticed a few improvements since I started on Cogane about 12 weeks ago. I have a faster gait, and my feet don't shuffle so much. And...my right arm swings a little more than it has.

I used to have horrible neck pain...daily. That's almost non-existent now.

Not a lot, but some positive results. I was hoping to have everything vanish, and be back to the me I used to be.
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Old 06-25-2012, 08:23 AM #32
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Default Cogane Phase 2
I have been on cogane for 12 weeks. Not sure if im on placebo or low dose. I have not had any major side effects accept stomach cramps. There are days I feel better and there are days I feel worse, for the most part I am trying to stay positive!
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Old 06-25-2012, 01:43 PM #33
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The stomach cramps vary from day to day for me too. I have to get myself geared up to take my doses each morning, knowing the cramps are sure to follow....not always convenient!

Guess we'll take the good days with the bad, hoping all of this will be of benefit down the road for all of us.

I would really like to hear some fabulous success stories from those out there who have noticed some positive results.
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Old 06-25-2012, 01:57 PM #34
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don't you have to sign a confidentiality agreement in this trial?
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Old 06-25-2012, 04:00 PM #35
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Quote:
Originally Posted by sugarvette View Post
You are absolutely right Peter, I really hadn't thought of it in that sense that any sort of repair will take longer than a few short months.

Thanks for pointing that out to me.
I am on cogane as well and i have the same feelings as you do. I am not sure if it is working or not. Some things seem better some not so much better. I was hoping to have complete reversale of symptoms. Peter maybe right though!
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Old 06-25-2012, 04:17 PM #36
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don't you have to sign a confidentiality agreement in this trial?
I don't remember that part but if the news I share can be helpful to others so be it! My family ask me all the time how I am doing. Should I not share the information with them? Can I stop them from telling other people? More importantly this is a trial and nobody knows what medication if any they may getting I could very well be on the placebo. I wont know until next year (hopefully!) That being said I could be getting the drug and it just doesn't work. I'll know soon enough.
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Old 06-26-2012, 06:55 AM #37
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Quote:
Originally Posted by highland23 View Post
I don't remember that part but if the news I share can be helpful to others so be it! My family ask me all the time how I am doing. Should I not share the information with them? Can I stop them from telling other people? More importantly this is a trial and nobody knows what medication if any they may getting I could very well be on the placebo. I wont know until next year (hopefully!) That being said I could be getting the drug and it just doesn't work. I'll know soon enough.
There is no confidentiality clause.

Considering that PD supposedly exists for years before becoming noticeable, I would realistically expect Cogane to take months for any benefits to become truly apparent.
It is not supposed to 'mask' symptoms as with existing meds, but to slow, halt or maybe even reverse the progression, this being so much harder to see or measure.
Peter
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Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less, in human beings of whom they know nothing”
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Old 06-26-2012, 11:11 PM #38
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Since we are all fairly new to the effects of PD, having recently been diagnosed to take part in this study, I think we all have very high hopes this will be answer everyone is searching for. I sure hope so....even if it only slows its progression down a bit....that's a bit more time that we can enjoy doing the things we like to do.
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"Thanks for this!" says:
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