Bearing in mind that I may have been on the placebo, I actually felt that I was on the real thing (my non working little toe tingled and felt hot the week I started, and my left arm actually swung when I walked).
In myself I felt good on it, with the only side effect the laxative effect of the coconut oil suspension you have to drink.
My tremor continued but would lessen 3 or 4 hours after taking it, only to return the following morning. Over the 6 months the tremor probably got marginally worse.
I continued working throughout, so in that respect it was 'business as usual'

My score on the 'quality of life' questionnaire, and 'IQ' style tests remained the same at the end of the 6 months, as in the beginning.

It's difficult to know where I would have been if I hadn't taken it. I'm coming up for 2 years from dx, and stll take no meds (apart from the Cogane 6 month trial). If I had a choice I would have continued with it, since at least there were no side effects as existing meds seem to provoke.

I started Cogane 11 weeks ago, and I'm curious how others are doing that are also participating in this Phase II trial.

So how are you feeling ? Did you notice any improvements ?

I almost feel worse, with more symptoms popping up. My doctor thinks that since I am just newly diagnosed with PD, that perhaps I'm looking for little things. Perhaps he's right.

I have seen a couple of improvements...but nothing to write home about.

I will be finished with my portion of the Phase II trial in September. That will be interesting to see what happens then.

You're right. It's probably too early yet to see significant improvements. By the way, are you sure if you are on cogane or is it possible you could be on placebo ?

I guess no one REALLY knows if they are on the real thing or a placebo. We all hope we get the actual drug and it does wonders for us...but that's all part of the study.

I have noticed a few improvements. I have a faster gait, and my feet don't shuffle so much. And...my right arm swings a little more than it has.

I used to have horrible neck pain...daily. That's almost non-existent now.

Guess I was hoping to have everything vanish, and be back to the me I used to be.

I don't know whether cogane will CURE PD. But I see you did improve. And you are only taking it 11 weeks. Let's see what happens after 12 months

Thank you....I like your positive attitude and comments. Especially when this thing can be very depressing at times!

Well I think your experience to date sounds very positive, I think reversal of the disease and repairing neurones takes a longer time span than 11 weeks
Peter

You are absolutely right Peter, I really hadn't thought of it in that sense that any sort of repair will take longer than a few short months.

Thanks for pointing that out to me.