With apologies to the bard...

But this is serious. What pattern does your bladder follow? Uniform thru the 24 hours? More at one part of the day than another? How about in relation to sinemet?

I really need to know because searching this forum seems to indicate that it is not a big problem for anyone but me and Laura. Can that be so?

It is a darned big problem for me. Every night I generate one to two liters and am up as many as a half dozen times. Since walking is so chancy I use a plastic urinal so am keenly aware.

When meds start to work, the bladder starts before the legs, so I have to be very careful as to when I go out. And if at home I am chained to the jug. It is a real drag on the QOL.

And I assumed that that was just a sinemet extra but now have doubts.

Peeing at the wrong times and without the right undergarments is my number one (pun intended!) PD problem.

If I start to go, I cannot stop it. I depend on depends. It has a lot to do with gravity ... I am ok in bed as long as I can stand it, but once I can no longer stand it, it's a race to the bathroom!

And that's the sorry truth!

My dad has some ongoing issues with bladder spillage at night mostly. Getting awake & out of bed to the bathroom fast enough is one issue.
He has been getting up often at night, and sometimes says "it" gets ahead of him...before he is at the toilet.

They ended up in the urgent care after thanksgiving because it had become worse than usual.
No testing done there but they gave antibiotic Rx in case of urinary infection and mentioned possible prostate issues.

Seems a bit better now but there's a follow up w/ regular dr soon.

Hi Rick,
I'm thinking things that maybe aren't PD related.
Had your prostate checked lately?
Are you on any anti hypertensive drugs etc? They can often contain diuretic type properties.
Maybe restrict fluids after a certain time in the evening to help with nocturia?
Then again if you've gone from off to on before settling down for the night the need to empty your bladder might be more obvious when you do come on.
Anyway I envy you blokes with your urinals! lol

Carey - I am sure that you remember our "potty" incident one time at PAN. You had the urge and my room was rhe closest in sight. Wherew but at a Parkinson's forum could you bang on a ho tel door - yell, ""Let me in! I am about to pee!" amd have the person in the room just open up and let you inn without question? I still chuckle when I think about that time. lol

And Rick - you said, "It is a darned big problem for me. Every night I generate one to two liters and am up as many as a half dozen times. Since walking is so chancy I use a plastic urinal so am keenly aware." I can empathizze with having to get up multiple times - but the plastic urinal is not a goood solution for me! lol I do have to resort to crawling to the "throne" when I feel that it is too risky to walk.. Some have suggested a bedside toilet, but I haven't resorted to that . . . yet.
Peg

Just of late I've noticed being ambushed by a bathroom dash. I'm going along just fine but just thinking about a bathroom trip triggers an uncontrollable urgency that has me wishing for snaps rather than buttons on my pants. I seem to have lost most sensation that leads to control. Once urgency begins there seems to be no muscle control. Add to that a couple of nightly trips that destroy any hope for a full night's sleep. Is this all just one more manifestation of brain to muscle disconnect?

There are also two metabolic reasons for increased sleep time urinary increase, besides the aging common ones we think of in older patients-- prostate, or overactive bladder etc.

1) if your blood pressure is high during the day, and goes down when you sleep (or if you take your BP meds at night), increased urine flow occurs. This is because when you are up and moving around during the day and have higher blood pressure, the renal arteries clamp down to save blood flow so it can be diverted to the brain and muscles. Once you suspend activity and lie down, these arteries open back up and urine flow begins again.
This can be a sign of edema during the day also. People with enlarged hearts also can make more urine at night.

2) If you eat a large meal for dinner, and are insulin resistant or beginning Type II diabetes, there will be more urine at night also.

In general getting up once in the night for older patients is considered normal. More than once is a signal that something is possibly wrong. For males, prostate issues I think are the most common, non metabolic cause.

I think it is PD related for most of us..men & women......before I started supplementing my body with the l-dopa tincture from fava plant...I was urinating more and more frequently until it was about every 20 minutes. Then I soaked myself at work twice in just a couple of days and had to change (luckily had clothes ther to change into!)
As soon as I took my first dose of tincture...the badder thing was gone and I was back to about 3 to 4 hrs between trips to the "Jon" again. Nitetimes were especially frustrating at 4 to 5 trips a nite on unbalanced feet that weren't fast enough...now I "go" once or not at all at nite (though right now am dehydrated and that may cause the not at all nites) Anyway, l-dopa sure changed the "Bladder thiing" for me!

I cant pass a drop of urine when Im dyskinetic if I have a bladder full, untill the dyskinesia stops

That sounds like a good thing! lol

Peg