Good to see you ol'cs and lou lou!
Take a look at the discussion in this thread:
http://neurotalk.psychcentral.com/thread168380.html
We have had our central nervous system hit! That means every body system we have has the potential to become symptomatic.
We have been putting band-aids on the symptoms for years and years! Sinemet (carbidopa/levodopa) quieted the symptoms enough to keep us quiet - for over 40 years. Then shazam! They find that the pill used to quieten us is causing even worse side effects. S
Someone said they would eventually have to take me off my pain meds. My reply was, "Over my dead body!" A hush hit the roon and I swallowed hard.
We'd better get busy and make lots of noise or it will be just that . . . over my dead body!