Parkinson's Disease Tulip


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Old 09-12-2013, 09:09 PM #21
satwar satwar is offline
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Originally Posted by badboy99 View Post
Satwar Thanks for your excellent responses. I'm going to follow your suggestion and bump up my dose. I'll let you know how it goes. I will also make some diet adjustments. How long at 6 to 8 tablespoons before you realized it was the oil kicking in and improving your situation?
Please keep in mind that everyone is different, and will respond differently. I'm looking back in my diary and some of the non-PD improvements (clear mind, positive mood) became apparent after 2 weeks. I also had my first episode of cessation of right hand tremor, which lasted several hours. The fading of my right hand tremor has not been a linear improvement, but I can now look forward to a significant portion of each new day without tremor, as long as I remain stress free. My remaining challenge is to see if my tremor will become more resistant to stress. I have to keep reminding myself that PD took 23 years (diagnosed for 13 years) to get to where I am today, so it may take a few years to repair that damage. I'm not waiting for a miracle, and am thankful for what I have already achieved. The certainty of living in a wheel chair in the future has become a little less certain in these past few months.

The coconut oil gave me a beach-head to launch my battle against PD. I had my blood work done after about 1 1/2 months and the results gave me the courage to make a lifetime commitment to coconut oil. Then I consulted with a nutritionist to get my diet plan and help me in getting my weight down.
It is really quite a juggling act, trying to lose weight, and decrease my tremor, and eat nutritious meals. My first attempt at reducing my weight on my own failed miserably. I was almost disabled by my tremor. Fortunately a good well balanced meal with carbohydrate pulled me out of the tremor. The meal planning by a nutritionist has now solved that problem.

Good Luck. And take it slow on increasing the dosage, it can cause intestinal distress.

I should also mention I take omega 3 oil because coconut oil does not have any. I take a number of other supplements but have not seen any improvement to my symptoms like I did with coconut oil.

Last edited by satwar; 09-13-2013 at 06:49 AM.
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Old 09-13-2013, 01:27 PM #22
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Can you also tell what and how much carbs if any you eat in any form. Thank you.
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Old 09-13-2013, 01:48 PM #23
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Can you also tell what and how much carbs if any you eat in any form. Thank you.
I haven't done that, but I can try to figure it out for you. I'll need a few days.

I'm calculating ~ 65 g net carbohydrate (Total - Fiber). The main contributor are my large three times daily servings of kale (2-3 cups = 12-18g per meal), broccoli and red cabbage.

Last edited by satwar; 09-14-2013 at 11:18 AM.
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Old 09-14-2013, 04:27 PM #24
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Interest in the potential for coconut oil's use in combating Alzheimer's grew in the wake of an October 2011 online article and a January 2012 Christian Broadcasting Network (CBN) video touting its efficacy in that regard. CBN is a Christian television broadcasting network in the United States begun by Pat Robertson in 1961 that is best known for the 700 Club. Dr. Mary Newport (featured in the CBN video linked to above), author of the 2011 book Alzheimer's Disease: What If There Was a Cure?: The Story of Ketones, and the medical director of the neonatal intensive care unit of Spring Hill Regional Hospital in Florida, supports the glucose-starvation theory and postulates ketones (delivered in the form of coconut oil) provide an alternative energy source for brain cells that have lost to Alzheimer's their ability to use glucose (the brain’s chief energy source). She points to her own husband's remarkable results after having had his diet supplemented with this substance as one of the proofs of this form of treatment.
Read more at http://www.snopes.com/medical/diseas...Hhth1M8BBgk.99


Except for personal testimonies on a number of sites this is the only background I have on coconut oil. Is there any further research or proof to back the claims made for it?
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Old 09-14-2013, 08:19 PM #25
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Interest in the potential for coconut oil's use in combating Alzheimer's grew in the wake of an October 2011 online article and a January 2012 Christian Broadcasting Network (CBN) video touting its efficacy in that regard. CBN is a Christian television broadcasting network in the United States begun by Pat Robertson in 1961 that is best known for the 700 Club. Dr. Mary Newport (featured in the CBN video linked to above), author of the 2011 book Alzheimer's Disease: What If There Was a Cure?: The Story of Ketones, and the medical director of the neonatal intensive care unit of Spring Hill Regional Hospital in Florida, supports the glucose-starvation theory and postulates ketones (delivered in the form of coconut oil) provide an alternative energy source for brain cells that have lost to Alzheimer's their ability to use glucose (the brain’s chief energy source). She points to her own husband's remarkable results after having had his diet supplemented with this substance as one of the proofs of this form of treatment.
Read more at http://www.snopes.com/medical/diseas...Hhth1M8BBgk.99


Except for personal testimonies on a number of sites this is the only background I have on coconut oil. Is there any further research or proof to back the claims made for it?
Don't forget Bruce Fife's book "Stop Alzheimer's Now"

Clinical trials (proof) are in very short supply, because so far very little money is being made available to fund ketone research.

The only clinical trial (proof) that I am aware of is in 2009:

Study of the ketogenic agent AC-1202 in mild to moderate
Alzheimer's disease: a randomized, double-blind, placebocontrolled,
multicenter trial
Samuel T Henderson*, Janet L Vogel, Linda J Barr, Fiona Garvin, Julie J Jones and Lauren C Costantini

Currently there is a clinical trial being conducted at the University of Florida, Byrd Institute but results won't be available for several years. This trial was funded anonymously based on a significant number of anecdotal reports submitted to Mary Newport after she published her book.

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Old 09-15-2013, 08:15 AM #26
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No you read it right, tablespoons. This is defined in both "Stop Alzheimer's Now" and "What if there was a Cure" books on coconut oil therapy. Both books also talk about reducing carbohydrate intake to achieve weight loss, not calorie counting. Coconut oil burns off very quickly and is an unmistakable sensation, it is definitely not metabolized like carbohydrate.

My nutritionist designed my meal plan around 6-8 tablespoons of coconut oil per day and I was actually losing weight. There was no calorie counting verbalized when making the meal plan. Basically she said for my body weight I must eat 100 g of protien per day, which I get from Whey protein, pumpkin seed, sunflower seed, hemp seed, chicken, salmon. She then said I must eat whole vegetables at every meal, which I have 3 cups (at least), comprised of at least two from kale, brocolli, red cabbage, carrots. I also consume berries and large oat flakes every day.

I must say I feel fantastic and the parting words from my family doctor were "I fully support whatever you are doing, keep it up"
if your family doctor supports you, why not approach your local tv/radio/newspaper and tell them your story with your dr. verifying your experience? or even without your dr, you could provide your medical records. i assume some health care professionals will not endorse a procedure like this because of liability issues but your med records could have the dr's names blacked out and still be valid proof.
i'd also try to get a pd researcher interested, contact the nearest university doing research.

that's what i would do if i had stumbled onto a treatment with such amazing results.
possibly post a before and after video on youtube, you stated the affect is transitory, if you miss a day your pd symptoms come back? so should be able to take a video.
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Old 09-15-2013, 11:46 AM #27
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if your family doctor supports you, why not approach your local tv/radio/newspaper and tell them your story with your dr. verifying your experience? or even without your dr, you could provide your medical records. i assume some health care professionals will not endorse a procedure like this because of liability issues but your med records could have the dr's names blacked out and still be valid proof.
i'd also try to get a pd researcher interested, contact the nearest university doing research.

that's what i would do if i had stumbled onto a treatment with such amazing results.
possibly post a before and after video on youtube, you stated the affect is transitory, if you miss a day your pd symptoms come back? so should be able to take a video.
As I understood it, the purpose of this thread was to ask whether anyone had results to share with coconut oil. I have shared because I have been very pleased with the results I have had in five months and it may help someone else. I'm not trying to prove anything to the world, I am and will always be merely anecdotal evidence because I'm not a scientifically designed trial. In spite of early progress my personal goal is to stay my course for at least two years before I make any decisions, after all my PD symptoms took ~23 years to get where they are today. I'm not waiting for a miracle, just trying to improve the quality of my life to the best of my ability.

Further, what do you think Mary Newport (What if there was a Cure) has been doing these past few years but getting research in universities started. Yes, she has my number.

Last edited by satwar; 09-15-2013 at 12:53 PM.
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Old 09-30-2013, 02:13 PM #28
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Old 09-30-2013, 02:18 PM #29
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Satwar, I'm starting to see results. Lost 10 pounds, inflammation is gone from my hands. I'll check my numbers in about 3 more weeks.
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Old 09-30-2013, 05:25 PM #30
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Satwar, I'm starting to see results. Lost 10 pounds, inflammation is gone from my hands. I'll check my numbers in about 3 more weeks.
I assume your talking about blood work. The coconut oil fixed my cholesterol very quickly, within a month.

How many TBS are you taking daily ?
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