[shetawk]

Do you experience this symptom?

I often, especially when moving/walking, feel as though there's a weak electrical tingle (like a light bulb filament sizzling) inside my skull.

The area is shaped like a bathing cap on my head.

It isn't painful, just stops me in my tracks.

Never read or heard of that symptom from anyone else.

Is it PD or me?

Lynn

[Bob Dawson]

Hmmm.
Electrical tingle sensation. I don't get that in my head, but many times when I am about to shift from Off to On, I get very clear electrical tingling sensations in my arms, legs, abdomen, electrical charges moving around inside me, and I often take it as a sign that my body is ready to get moving again, so I get up and stretch and grit my teeth and start doing things, as the Off turns to On.
The electrical sensations are not there when I am On, or when I am completely Off, just when I am getting the first glimmers of turning On, in fact it seems to be a signal that I am in touch with muscles again.
I have, on this site, heard several other people describe the same thing.
But your sensation in the head... that I have not had. Interesting, though, that it is also an electrical tingling sensation.
I have known people who do not have PD, but who are very aware of the electrical sensations in the body... dancers, Continuum, etc. For me the tingling sensations are always great to feel, because it means that within half an hour I will be in one piece again. That`s always a great feeling, to have another On showing up just when you think you can`t take it anymore. I like my electrical tingling sensations.

[GregD]

I understand what you are describing and Yes, I do experience that. Actually mine feels like I have been wearing a hat or headband or something which I rarely do these days. I do not know if this is a PD symptom or side effect. It is a weird feeling thats for sure. It hasn't killed me, yet, so it is just one more thing to live with.

[paula_w]

i felt that when i first started pd meds. i remember calling my doctor and asking why my head was tingling and he wasn't concerned. i had just started eldepryl or maybe it was mirapex. are you taking those medicines and early on in your pd ?

[shetawk]

<Are you taking those medicines and early on in your pd ?>

Paula, I've had that sizzle feeling for many years, maybe 40. Was diagnosed as narcoleptic and Rx'd benzedrene for 2 years a long time ago. Could only take one a day although prescribed 3 x. Stopped when my gums started bleeding and I got so thin that my bones stuck out...bennies killed any thoughts of eating and food.

Don't know how long I've had PD symptoms. May have began in 2007 when standing from sitting became difficult. Blamed it on fact that I fell on my knees 3x in 5 years and figured it was arthritis. Didn't go to neuro until I began losing my balance and writing small. Dr. Google said it could be lack of blood to brain.

Had carotids checked. Right carotid was 90% clogged so I had surgery. For 5 days after surgery my PD symptoms were almost gone and I thought I had won; then symptoms came back with a vengeance, this time with added nerve damage from surgery.

Tried many meds. Only one that helped is Amantadine, which is losing effectiveness.

Had hair analysis and am loaded with copper in tissues which can cause PD symptoms. Blood heavy metals test coming next week.

Had spinal tap last week to find out "idiopathic" part of "Idiopathic PD" and whether Lyme was gone.

After that, I don't know where to look.

Diet is pretty good but I may go for GAPS anyway.

Lynn