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Old 05-23-2012, 04:01 PM #31
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Tears for you, my dear friend whom i have never met. Wise woman, elder, teacher --- now please teach us how to proceed out of here with grace---still believe in miracles, praying for your peace and illumination, and thanking you for sharing your soul with this profoundly strange fellowship that has drifted together here

With gratitude, respect and love
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Old 05-23-2012, 04:10 PM #32
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Paula, this can't be happening. You're why I fight so hard. You are so strong.
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“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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Old 05-23-2012, 04:55 PM #33
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Default I don't know what to say Paula ...
although we have never met, I just know you are a nice person and your good nature reaches out. You have always made myself and others welcome on "the board" and I cannot help but feel angry that you have such bad luck with your health.

For the first time I really don't know what to say.

Take real good care,
Neil.
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Old 05-23-2012, 05:25 PM #34
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Default Paula, this post is from Joan Snyder (jes123)...
jes123 : <QUOTE>i have just been hit by the proverbial 2 x 4; my world has been rocked and i am sad beyond belief. just this morning, i learned that a dear friend & fellow pd patient, paula from florida has been dxed with esophageal cancer.this is just the icing on the cake for dealing with the devestating effects of pd for over the past 20 yrs-
15 of those years as a very good friend to me...traveling to peoria to support me when i have had my fundraisers and galas. paula is always here-right where i needed her, dyskinetic as hell, and having the time of her life. paula especially loves the bands that i had to play at my events (ready, steady, go is a particular fave!). she can dance for hours unmindful of the pd for the short time that she can abandon herself to the music. i applaud her choice of quality of life rather than to undergo chemo and radiaation just to buy extra days. i love you paula and i am just a bit jealous. you are right when you say that parkinson's prepares you for death-in a good way. it forces one to set priorities and to live in the joy of the moment. thank you for teaching me to dance</Quote>
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Old 05-23-2012, 09:25 PM #35
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Default lovely words
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Originally Posted by Atma Namaste View Post
Tears for you, my dear friend whom i have never met. Wise woman, elder, teacher --- now please teach us how to proceed out of here with grace---still believe in miracles, praying for your peace and illumination, and thanking you for sharing your soul with this profoundly strange fellowship that has drifted together here

With gratitude, respect and love
What a beautiful post. thank you.
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Old 05-23-2012, 09:27 PM #36
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Quote:
Originally Posted by michael7733 View Post
jes123 : <QUOTE>i have just been hit by the proverbial 2 x 4; my world has been rocked and i am sad beyond belief. just this morning, i learned that a dear friend & fellow pd patient, paula from florida has been dxed with esophageal cancer.this is just the icing on the cake for dealing with the devestating effects of pd for over the past 20 yrs-
15 of those years as a very good friend to me...traveling to peoria to support me when i have had my fundraisers and galas. paula is always here-right where i needed her, dyskinetic as hell, and having the time of her life. paula especially loves the bands that i had to play at my events (ready, steady, go is a particular fave!). she can dance for hours unmindful of the pd for the short time that she can abandon herself to the music. i applaud her choice of quality of life rather than to undergo chemo and radiaation just to buy extra days. i love you paula and i am just a bit jealous. you are right when you say that parkinson's prepares you for death-in a good way. it forces one to set priorities and to live in the joy of the moment. thank you for teaching me to dance</Quote>
i have not seen any pwp suffer as you do. and yet you make me laugh. that's the trick. i love you.
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Old 05-23-2012, 09:31 PM #37
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Default be strong and honest
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Originally Posted by indigogo View Post
Paula, this can't be happening. You're why I fight so hard. You are so strong.

and you are.
love, paula
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Old 05-24-2012, 12:13 PM #38
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Default paula
i type this because my voice fails me. your passion, compassion, wisdom, sense of humor and strength have taught, comforted, and inspired us for years, and continue to do so. thank you.

kate
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Old 05-24-2012, 02:16 PM #39
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Default I think you know
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Originally Posted by aftermathman View Post
although we have never met, I just know you are a nice person and your good nature reaches out. You have always made myself and others welcome on "the board" and I cannot help but feel angry that you have such bad luck with your health.

For the first time I really don't know what to say.

Take real good care,
Neil.
...that you are one of my favorites. you were not judgemental when i was insane on the wrong medicines. i have lived my life pretty openly here - it's like home and you are a family member. thanks for being my friend.
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"Time is not neutral for those who have pd or for those who will get it."
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Old 05-24-2012, 03:41 PM #40
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hey lower case lil,
i love ya paula, make your best peace.
ya know i'm from another culture, as they say.
make the very best of your gift of time, no one is given a guarantee for tomorow.
tammy
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