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05-27-2012, 06:48 AM | #1 | ||
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Junior Member
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My wife takes her last dose of Sinemet and Comtan at 10:30 PM right before she goes to bed. She will often need to get up 2 or 3 times to go to the bathroom. By the time 2 or 3 AM rolls around, she is too stiff to get out of bed herself and needs my assistance. She takes her first dose of the next day at 7AM. By that time she is extremely stiff and basically can't move at all without assistance.
She has tried Sinemet CR and it was totally worthless! I know that Impax and GSK will soon be launching a new long-acting Sinemet which is appears to be the first really long-acting Sinemet. Far more effective than Sinemet CR or Sinemet with Comtan. Hopefully, this should be useful for overnight dosing as well. In the mean time, what do folks do about this problem? Do you take a middle of the night dose? Do you do something else? Thanks in advance. Folks here always have great ideas! Howard |
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05-27-2012, 07:24 AM | #2 | |||
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In Remembrance
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This has been a problem for me at times, although at present the creatine that I describe in another thread seems to be helping even here. You seem to have several problems going at once- 1)her sleep is disturbed; 2)yours too; 3)the wee hours stiffness is a nightmare and a fall just waiting to happen; 4)more sinemet means more urine, at least for me.
I would consider the following- Lack of sleep will destroy you both. If you can get to the point where she can safely manage the night shift alone, then you will be able to do much more for her. If an extra dose of sinemet made this happen, I would jump on it. Even if she adds another trip to the loo it may be worth it. And those nightly reminders of just how bad things could get are very bad for morale, too. If she can safely use it, get a bedside commode for the wee hours so that she can let you sleep. If needed, an absorbent pad is an option as well. The main thing is to avoid adding a broken hip to your problems. Good luck - Rick Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | Dejibo (05-30-2012) |
05-27-2012, 02:27 PM | #3 | ||
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Member
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satin sheets and a portable grab bar.
michael |
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06-01-2012, 12:42 PM | #4 | ||
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Satin sheets... I love it. I had gotten myself one of those 4" mattress toppers made out of that foam that conforms to the body. It was nice to sleep on but, I noticed that it definitely hampered my ability to turn over in bed. I've also noticed that I must be very careful about night clothes as they tend to make moving around more difficult. The best, I've found. is to sleep naked. You can move around the bed easier and you don't have anything extra to deal with as you make that middle of the night bathroom run. Now your idea of satin sheets sounds even better... less friction!
I am also considering a high tech helper. You can buy fiber optic tape. ( one source to get you started but only one of many and I'm not specifically recommending this company and I have not done business with them http://www.fiberopticproducts.com/Sideglow.htm) My thought is to get some and tape my path to the bathroom... not unlike the lit up path in an airplane. That would help create an easy to follow path to the bathroom and maybe save a fall from running into something. |
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06-01-2012, 05:42 PM | #5 | ||
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Madamlash,
Good one re satin sheets! Satin jarmies as well makes turning over a lot less effort too. |
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06-08-2012, 01:46 PM | #6 | ||
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I have tried red, green, yellow and blue, and blue, without exception works best for me. you might, for uniformity and appearance only, cut the tape into strips 1/4 inches wide and 3 to 4 inches long. lay the strips in front of you 12 to 16 inchs apart, depending on your natural stride, and stagger them left and right.
BED [[][][]]___ ___ [[][][]]___ ___ [[][][]]___ BATHROOM Try it. It works. |
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05-27-2012, 02:32 PM | #7 | |||
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Junior Member
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Things you don't want the neighbors to know:
A few quart canning jars (with lids), on the floor by the bed, work just great. You can set them in a square plastic tub if you're not confident of your aim. I use at least half a dozen, so they don't become heavy and unwieldy. Keeping them on the floor means you get down to use them, rather than up, balance by holding on to a bureau drawer knob. Then you just scoot back up into bed without ever having to turn around. The simplest solution is the best, and safest. In the morning the night's collection goes in a bucket, and is surreptitiously added to the garden compost. Retro rocks! Cheers Quote:
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05-28-2012, 01:22 AM | #8 | ||
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Howard,
2 or 3 times a night seems to be a little bit more than average. I'm thinking maybe a reduction in fluid intake of an evening or perhaps the possibility of a urinary tract infection could be investigated? So Sinemet CR doesn't work when taken as last evening dose? I used to take it only then for a longer on time pre DBS. |
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05-30-2012, 07:13 AM | #9 | ||
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Quote:
Sorry for the indelicate topic, but such is life! Sahsa |
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05-30-2012, 10:12 AM | #10 | ||
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Quote:
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