[Debi Brooks]

MJFF is working on a some projects related to clinical studies in PD and wonder if some of you might help us with nomenclature. We are interested in hearing feedback on community preferences on how to refer to PD clinical study participants.

For instance, MJFF is about to launch a clinical study that will involve newly diagnosed, unmedicated people with PD and healthy adults who are not first degree blood relatives of someone with PD. How best should we refer to these two audiences in presenting the study to the general public.

We would welcome your feedback on whether you like these and/or new names we should consider. Looking at some of the suggested pairings below, is there is a clear consensus (pro or con). Or, how might you mix and match?

Many thanks...Debi


PD Patients and Healthy Volunteers
PD Participants and Non-PD Participants
PD Patient Volunteers and PD Community Volunteers
PWP (People with Parkinson’s) and PD Partners