Who's the rightest? I believe there will more focus on translational research as our funding shrinks.i' way too "off" to explain that right now,so would one of you experts tdo that for me?
Peg

Ah yes, The Mysterious Anuket. My first advisor about all things Parkinson's.

For several years, I constantly came back to the same conclusion, which was: "The only thing we know for sure about Anuket is that her name is not Anuket."

Hi Peg,

I don't claim to be an expert. What is "translational research"?

I think there is more agreement than disagreement here except about the $$....and also about what "cure" means. While it achieves amazing results in emergency measures has modern western medicine found any"cures" for all things "auto immne" such as cancer, arthritis, aids, pd ???

there are people that have realized complete remmission of sx from these maladies. These people are readily dismissed by many as having been misdiagnosed rather than being considered precious models to study.

The point I attempted to make iis that coonsciousness and science are no longer mutually exclusive....that modification may be the first step for those who struggle from the issues caused by the drug cocktails.

There is a "medicineless" hospital in China that the news media should take a daily accounting of their successes - perhaps our path to cure can be asssisted by those who have actuuually achieved sx remmission- and my guess is that those folks are the ones you hear about sitting around a campfire listeninng to a Native American storyteller - probably not taken seriously by fox news.....

Lots of different topics in this thread.
China, for example. They have made a national decision to become a world power in medical health: they want to lead in research and dominate world markets for medical products. And they are attacking it from all angles. Medicineless clinics... and also the biggest sinamet factory in the world. Pouring money into drug research... and also moving aggressively into world markets with an amazing array of herbs and mushrooms. A Parkinson's scientist I met worked for the Red Army; has a PD clinic in the Red Army military hospital... and China also has 200 clinics accepting "neuro-tourists" - Americans and Europeans flying to China, looking for something they can't get at home.... I read about just 2 of the 200 clinics, and these 2 were treating several thousand Americans per year. ... India is also in the game, heavily on the side of natural products... Europe spends almost as much as the USA on drug research... academia cranks out a thousand research papers about Parkinson's per year, Pharma will burn 500 million dollars researching a drug that gets delayed for 3 months because the FDA does not like the packaging. (I kid you not). When it finally does get to market, it turns out to be just another agonist, slightly different than the last one, and the difference is that it is the new cherry-flavored bubblegum format with coupons you can collect to get neat prizes and stuff. And none of these people talk to each other. The silos are all around the world. All separate. Scarcely aware of each other. And the patients are barely visible in the whole picture, except as statistics.
They have this world Parkie-fest in Montreal this year. I wonder if the world will be there, and if the world does get invited, will they talk to each other? And if they talk to each other, will the patients in some way be visible; after all, the entire PD Industry grew up around our disease and would not exist if we weren't around. We are the Founding Fathers and Founding Mothers of the whole kit and kaboodel. A multi-billion dollar industry built just for us. And that's where Soccertese's quote from MJF applies to the whole picture... it's a business that we want to put out of business, an entire industry that will have no market... I believe that all neuro diseases are going to be controlled - and here it comes for our 19th nervous breakdown - I believe they will be controlled within 5 years and eradicated from the face of the earth within 10 years. I know they have said 5 years every 5 years, but now I see the momentum, the whole ramshackle thing is gaining speed and starts to look like a freight train coming around the bend.
And this train don't carry no gamblers.
Just you wait and see - I will be proven right, yet again.

Bob,

Are you saying that through networking (laying down the pipelines as MF says) all of these organizations that produce medicines of all manner and treat people that we will see the quickening of separating the wheat from the chaff so to speak?

Sort of focusing the mass intent of the industry into a cohesive effort? Or more simply that through massive trials that cures will emerge in many forms? would this require a massive new infrastructure ? or could it emerge from humble beginnings ? can industrialization of the health industry really work?

. ...the power of one to revolutionize and impact the many (remember the "hundredth monkey effect" -remember spock in star trek - "the needs of the many outweigh the needs of the few then kirk comes back to assist spock because "the needs of the one outweigh the needs of many"..... a parable of the role the individual plays verses the masses and vice versa-

and more paradox cure byy necessity will be very very DIVERSE rather than singular
Cheers!
sharilyn

many questions...

so it dawns on me this morning thinking about all those clinics in China Bob mentions...what if the nocebo effect keeps people from healing from perfectly great therapies that might otherwise be very effective? What if our belief system is truly the mother of trump cards....and its not just about positive or negative thinking that activates our subconscious- so no matter whether its drugs or genes or yin tui na ....the bottom line - the home run - must have agreement of our subconscious to be effective

And one can observe it without visiting China or even getting up from your chair. One of the reasons that I have valued this forum over the years has been the general refusal to yield our personal power to an obviously dysfunctional medical system. We tend to be ornery. Compare that to some of the other PWP forums full of hopeless old folks waiting for Dr. Godot to show up with the magic elixir that he promised five years ago.

Don't misunderstand, I am fully aware that my quest may be as futile as their wait. But there is a huge difference in my quality of life. And there is a big difference in the chemicals that race through my brain. I am different than I would have been and in a positive way. My reality has been molded by my decisions and vice versa, as has theirs. But I tried to choose consciously and revise as I learned more.

It may come down to "attytood" that causes PD to be so maddeningly individualized. I have the impression that the ones of us that last the longest are the most determined, stubborn, etc.

buut maybe we do yield our personal power to an obviously dysfunctional medical system -whether we are aware of it or not- our subconscious is pregnant with cultural meme (includding the thought form that pd is degenerative and incurable)...ancestral memory in our DNA -- time freezing trauma which may include previous incarnations - and only god knows what else but ALL this can change if we can just shine some light on that which is rolling in the deep.

What fountainhead of yet undiscovered knowlege wil stop anyone from ever having to live though this slow torture of a disease again. It's agreed them, this generation of advanced YPWP, is pretty soon shot unless we get rescued soon. The right thing is to forget about us and give most resources to the many that should never come after us. It is foolhardy to not explore all the reasons why people develop PD, and simply prevent it from happening at all. We will have been poor examples to have gone before our future YPWP, and have to explain to them our misguided efforts that were mostly expended in attempting to just let the condition develop, then treat it with all the vagaries that constitute the realities of our inadequate treatments. The present day approaches that simply worsen and prolong the spectre of PD, must be alleviated by STOPPING THIS DISEASE.

[QUOTE=ol'cs;943629]What fountainhead of yet undiscovered knowlege wil stop anyone from ever having to live though this slow torture of a disease again. It's agreed them, this generation of advanced YPWP, is pretty soon shot unless we get rescued soon. The right thing is to forget about us and give most resources to the many that should never come after us. It is foolhardy to not explore all the reasons why people develop PD, and simply prevent it from happening at all. We will have been poor examples to have gone before our future YPWP, and have to explain to them our misguided efforts that were mostly expended in attempting to just let the condition develop, then treat it with all the vagaries that constitute the realities of our inadequate treatments. The present day approaches that simply worsen and prolong the spectre of PD, must be alleviated by STOPPING THIS DISEASE."


yes olcs' - I am encouraged by remembering that our children are smarter than us- they will find new pathways and we can help them by helping ourselves..

perhaps many YPWP were born with less than the full compliment of dopaminergic neurons... Endocrine interruptors such as diethyl stiburol aka DES and gasses used to anesthetize birthing mothers were the cocktails of the day back in the 50s to early 60s for pregnant moms. And this generation of YPWP have children that are in their 20s and 30s probably presenting with alll manner of CNS imbalances from ADD to epilepsy (gene expression is highly individualized).

and those of us YOPDers would do anything to help our children. Do any of you know whether children of YOPDers present CNS abnormalities more likely from moms with pd rather than dads with pd since mitochondrial DNA is inherited by the mother ?or....since gene expression is so very individualized is this type of statistic just impossible to amass?

Do we have (or want) the power to STOP forces of nature? isn't it a good thiing that there are natural consequences to trauma, poisons and dissociation from our hearts? imagine - you put your hand on a hot stove, but.... don't feel the heat because you can take a pill that genetically modifies that sensation.....

Isn't it ultimately just as productive (and a heck uv a lot cheaper..) to focus on what makes us well? Etiology studiies though useful can be maximized with treatment protocols that as Bob so eloquently points at comes from all angles.

For all that money can buy how many pwpers out there without health insurance focuused on health promoting treatments with minimized drug uuse are faring better than those with the best treatment money can buy following the pharma protocols?

just wonderin....