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02-21-2013, 07:53 PM | #11 | ||
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"Thanks for this!" says: | Drevy (02-22-2013) |
02-21-2013, 09:31 PM | #12 | ||
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Magnate
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i'd stop trying to be your father's doctor.
didn't you say he lives in florida and you live in NY but he sees a neuro in NY? Do you get your pd info from somewhere else than this board? on 11/28/2012 you wrote "My dad is doing pretty well since seeing the "Parkinsons Doctor" in NYC(he lives in FL but visits us in NY) but he is noticing his voice change and his balance is a little unsteady. Again, he is in great shape. He use to be a very serious triathlete and marathoner and he still bikes very often. Any suggestions for his voice and balance change? Thanks. PS. I am going to have him try the Mucuna powder. " |
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02-21-2013, 11:38 PM | #13 | |||
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02-22-2013, 08:29 AM | #14 | ||
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Magnate
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02-22-2013, 01:47 PM | #15 | |||
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02-22-2013, 03:54 PM | #16 | ||
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Magnate
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from the website you referenced:
"Over 90% of patients can benefit from this NO DRUG approach, which eliminates the need for hundreds of billions of dollars of drug treatment each year, by properly managing a relative nutritional deficiency that has gone unnoticed until this research in 2011" is this treatment free? on an earlier post of yours you stated you take 6120mg of l-dopa in 3 doses. i can't take 200mg without getting sick to my stomach and you aren't taking any carbidopa so you must have a lot of l-dopa being converted to dopamine in peripheral tissues. are you sure about this? "I take the Hinz protocol which includes Mucuna. I take 7 tsps. per day of a 40% strength in divided doses. That is 6120 mg of levodopa. I take it with or without food. For example, I throw it in a blender in the morning with a lot of other things. I didn't have results til I reached this high dose. An advantage of this protocol is that you can take as much as needed to do the job. I don't have sudden ons or offs. I am consistently on. Dr. Hinz, who is monitoring over 600 of us at the moment, says it is because I take the right amount of l-tyrosine, in my case 15,000 mg per day. I also take 5-HTP to get the right amount of serotonin which is depleted by dopamine (and vice versa). Serotonin depletion is responsible for the problems associated with levodopa therapy, especially at high doses. No side effects, no dyskinesias, and he says no progression, either. I don't know if that's true, though, at least not yet. L-Cysteine is also taken for this. These amounts and ratios are derived from regular urine tests that gauge the function of the OCT gates in the kidneys that mirror the brain. It can take a few months to get the right doses and ratios." |
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02-22-2013, 08:28 PM | #17 | |||
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02-24-2013, 07:55 PM | #18 | ||
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He needs me to be his doc.....buddy. |
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02-24-2013, 08:27 PM | #19 | ||
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Magnate
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were're all concerned about our elderly parents and want to help others in the same situation. if i thought mucana was going to help or spending thousands on hinz's program would help my pd i'd be trying both, i've tried every other alternative medicine for pd and zippo, just wasted a lot of time and money.
HINZ has been around for years, mucana likely for a 1000 years, don't you think as desperate pd'ers are, in the age of the internet where you can't keep secrets, that if either had merit we'd know about them? why do you think we post here, to just discuss sinemet and feel sorry for ourselves? i imagine some of us post here to try and help newbies from getting sucked into potentially hopeless/expensive therapies. you can do whatever you want, it's a message board, you can ignore me. |
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02-25-2013, 08:55 PM | #20 | |||
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How much are you spending on Dr. Hinz protocol. And is there a special diet. I'm trying to set up an appt to see a doctor that does this protocol. Was any of it covered by insurance? Is it worth it. How long have u had PD? What symptoms has this protocol relieved. Sorry for so many questions.
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John Diag. Mar 2008 YOPD, @ age 39 |
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