Why do we just keeplooking?

Bob Dawson · 03-08-2013, 01:15 PM

Quote:

Originally Posted by Bob Dawson

e-mail sent:
Research opens up possibility of therapies to restore blood-brain barrier

Katrina Coutts
Public Relations Manager
Queen Mary, University of London
email: k.coutts@qmul.ac.uk

Dear Katrina,

One of our numerous members in the U.K. has started a thread on our Parkinson's Forum to discuss recent research at the University of London. The thread is located at: http://neurotalk.psychcentral.com/thread184739.html

Members our group will have questions. And if it looks as good as it seems, we can on our side spread the word among People With Parkinson's that there is some positive research that we want to encourage and speed up. Time is not on our side. Perhaps one or more of the people involved in this research could join our discussion. answer questions, avoid speculation, and we, who have Parkinson's, could cheer-lead for a victory over this and other brain and neuro diseases, and provide insight into patients' reactions and hopes and concerns.
Bob Dawson (speaking just for myself).

Hi Bob,
Apologies for the slow response. I've been on leave. I am not the researcher - I work in the university's communications team - but from reading the thread, Debi Brooks is on the right lines. The story and paper show that it’s not so relevant for PD since the scientists did not really find any disturbances in terms of ANXA1 expression in post mortem PD brain capillaries - but they did with MS.
I realise how frustrating all this is for you and hope there will soon be progress made by someone.

Best wishes,
Katrina

Bob Dawson · 03-09-2013, 11:44 AM

Hey Ron,
Maybe you were right in the first place! It seems we have been talking about two different studies.
Reported here:
http://neurotalk.psychcentral.com/sh...269#post964269

Ronhutton · 03-25-2013, 03:31 AM

I have written to Dr Egle Solito, Lead author in the paper
http://www.pnas.org/content/110/3/799.full.pdf+html
and received a very supportive reply. I have asked Dr Solito for permission to post her message here on the forum, but I have not had a reply yet, she is obviously very busy. She has referred my article to Professor Joan Abbot, an expert in the BBB.
I will post ant more news as soon as I get it, but it is looking good.
Ron

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