Bob - as Debi said at the top of this thread, she is, and the research community is, aware of the challenges inherent in the system.

I don't know why you started off one of you posts by saying that "this is another thing that won't be discussed at the WPC"

I had my poster accepted; it is on the Fox Trial Finder and Patient Empowerment. So, there will at least be one voice speaking out for the good of FTF, but also saying that simply matching patients with trials does not go far enough.

Debi knows, you know; your poster says there is one voice out in the hallway. but 3,000 people for 4 days - what gets discussed? Pick 5 of the controversies we know about. Any on the agenda?

Bob - you pick 5, and I'll give you an answer

A recent Zogby Poll shows that most patients are open to participating in a clinical trial if they get their physician’s recommendation. Over 70% of patients would consider signing up for a clinical trial if their doctor said it would be beneficial. Yet, only 24% of patients say they have heard about clinical trials from their health care provider. The main reasons for lack of patient participation is lack of knowledge and lack of trust. The best way to overcome this resistance would be greater participation by doctors and other health care providers.

http://www.researchamerica.org/uploa...icaltrials.pdf

"Lack of trust."
I try to build trust in the drug approvall process everywhere I go (and where I don't go, too). lol

WPC shouldnt be a place to air our indifferences - it should be (and WILL be if we all cooperate) a place to build patient empowerment. If you think mooney talks, try pulling the patient out of the drug discovery'approval process!
I used to jokingly say to my pprincipall friends, "If it weren't for those unruley kids and disgruntled parents, we might be able to have school!" Duh!

Bob, it's like when you introduced the AllTrials.org petition - I had to check it out before I entrusted my signature.

Debi - one minor detaillll has to do with the design of surveys. They usually make it easy to resond, but think if you had PD. We need BIG targets to mark. (I like those with one question presented at a time..

We need surveys that let you stoop and re-enter without starting aalll ovoer again.

We need to have humongous spaces to fill in personal info and be sure it is saved for the next time we visit.

And do surveys have to know the color of your toenail polish? Just ask the important stuff!

And plelase assume everyone understands that surveys should be at about 8th grade reading level, especially when writing the important stuff (like inclusion/exclusion criteria.)

And on purpose I did not go back annd correct my typos (well I did a couple)
See what I mean - keep survey requests smallll in # of questions and infrequent requests.

Would you please pass that ontoo the survey designers.

I'll be at WPC (Lord willing) bu only serving an advisory council, but I romise to give it 110%!

Oh, and I want too take Aunt Bean with mme, but scholarhips are gone (or so I think). Anybody like to spoonsor the Queen of Bean Acres?

Thanks
Peggy